The National Blood Clot Alliance (NBCA)
The
National Blood Clot Alliance (NBCA) formerly know as the National Alliance for
Thrombosis and Thrombophilia (NATT) is a patient-led, voluntary health advocacy organization. NBCA volunteers include many of the nation's foremost experts on blood clots and blood clotting disorders.
NBCA programs include patient education and professional training on the signs, symptoms and prevention of blood clots and clotting disorders.
NBCA combines the unique perspectives of health care providers, individuals afflicted with clotting disorders and community leaders who are passionate about this health care crisis. NBCA’s Medical and Scientific Advisory Board includes nationally recognized experts on thrombosis and thrombophilia.
The National Blood Clot Alliance is headquartered in New York state. Click here to view bios of the professional staff.
Stop The Clot® Programs and Partnerships
NBCA works closely with the Centers for Disease Control (CDC), thrombophilia centers, anticoagulation clinics, hemophilia treatment centers and the National Hemophilia Foundation
on its Stop-the-Clot™ Education Project, whose components include:
The Founding of NBCA
Although the organization is growing quickly and establishing regional chapters, it has retained its grassroots character; NBCA board members and volunteers are like part of an extended family. Our founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop at The Centers for Disease Control in 2003. Sharing a common concern, they resolved to build a national organization to advocate for – and to educate and support -- those afflicted with clotting disorders. Each board member has been touched personally by blood clots, DVTs, pulmonary embolism or such genetic variants as the factor V Leiden gene mutation.
The National Blood Clot Alliance Mission
The mission of the National Blood Clot Alliance is to prevent, diagnose and treat thrombosis and thrombophilia through research, education, support and advocacy.
NBCA's Objectives
Even though specialized knowledge about thrombosis and thrombophilia has mushroomed in the past decade, many health care providers at the front line of diagnosis still lack access to it. This means many of their patients don’t get timely and accurate diagnosis. Resources for care exist that should be better used. The National Blood Clot Alliance addresses major treatment issues to:
Prevent thrombosis and its complications.
Reduce death and illness related to thrombosis.
Assist in establishing guidelines for prevention, treatment, and management of blood clots.
Promote funding for and establishment of comprehensive thrombophilia programs to allow every patient access to thrombosis specialists within a reasonable distance where patients live.
Promote and assist scientists with research efforts relating to all aspects of thrombosis and thrombophilia.
Encourage activities to increase the number of specialists in thrombosis and thrombophilia, such as endowing training fellowships.
Initiate and promote educational activities for the medical and patient community, and for the public. Create a network of self-funded local chapters to improve the quality of life for patients/families through appropriate support.
