Randy is a Senior Policy Advisor at the law firm
Holland & Knight LLP in Washington, DC. He specializes in healthcare law
and government relations and also has an active regulatory practice in this
area. He represents health professionals, institutional providers, medical
device manufacturers and patient organizations. I had PE in 2002 and am
Factor V.
rfenninger@verizon.net
Dr. Ansell is the Chairman of the Department of Medicine at Lenox Hill Hospital in New York City. Before joining Lenox Hill Hospital, Dr. Ansell was Professor of Medicine at Boston University School of Medicine and Vice Chairman for Clinical Affairs of the Department of Medicine.
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After receiving his medical degree from the University of Virginia School of Medicine in Charlottesville, Virginia, Dr. Ansell completed an internship and residency at Tufts New England Medical Center in Boston, Massachusetts. Dr. Ansell then completed a fellowship in hematology at Boston University and in hematology/hemostasis at Boston’s Veterans Administration Hospital.
Dr. Ansell’s main areas of interest and research include hemostasis and thrombosis, with a special emphasis on thrombotic disorders and antithrombotic therapy. He has had a continued interest and involvement in the application of new modes of delivering and monitoring anticoagulants, particularly in the management of oral anticoagulant therapy.
Dr. Ansell’s main areas of interest and research include hemostasis and Dr. Ansell has approximately 170 publications in notable journals such as Annals of Internal Medicine, The New England Journal of Medicine, and The Journal of the American Medical Association. His publishing activity includes reviews, editorials, textbooks, videos, abstracts and letters. He serves as an associate editor for the Journal of Thrombosis and Thrombolysis and as an editorial consultant for such journals as The New England Journal of Medicine, Blood, Thrombosis and Haemostasis, and Circulation.
Dr. Ansell is the founder and Chair of the Anticoagulation Forum, a network of anticoagulation clinics throughout North America, and is a member of a number of professional organizations including the American College of Physicians (Fellow); the American Society of Hematology; the International Society of Thrombosis and Hemostasis and its Scientific Subcommittee on Haemostasis Testing; the American Heart Association (Fellow), and the American Medical Association. Dr. Ansell also serves as Chair of the Committee on Managing Oral Anticoagulation for the American College of Chest Physicians Consensus Conference on Antithrombotic Therapy.
Phil
is an entrepreneur. He specializes in starting, developing and selling
small businesses. Prior to being in business for himself, Phil spent 22
years with IBM wherein he held many different positions most of which
focused on helping business owners, non-profits and corporations to identify
and implement solutions that resulted in a greater return on their
investment. He earned a BA degree from Johnson C. Smith University, a MBA
from Wake Forest University and his Ph.D. from Christian Leadership
University. Phil’s wife, Gwen, (Gwendolyn C. Davis, Ph.D.), is a deep vein
thrombosis (DVT) survivor. Several years ago, they volunteered to lead an
effort to establish a “Stop The Clot” interest group in North Carolina.
Phil and Gwen are committed to work that enlightens others on the dangers
associated with blood clots (DVT) as well as volunteer and business
activities that aid in the prevention, treatment and support of DVT.
Mike is an executive with IBM, where he has been for over 18 years. He currently serves as World Wide Client Unit Director and manages several large electronic clients in the industrial sector.
Prior to taking this position, Mr. Hefron was the Director of IBM’s 360° Program for the Asia Pacific and Americas Group. This program was designed to create unique go-to-market partnerships with large clients in the form of “joint ventures.” Mike was responsible for building the 360° program and developing the infrastructure by creating the program model, securing funding, establishing meaningful and measurable success criteria and establishing a repeatable go-to-market process for the clients in the program.
Mike has also held the position of IBM Client Unit Executive; Georgia Industrial Sector, Business Unit Executive; Alabama/Mississippi Finance and Insurance, Branch Manager; Boston Finance, Marketing Manager and Rhode Island Finance, Product Specialist and Marketing Representative. He also owned and managed small businesses in the software and services market from 1993 to 2002.
Mike is married and has 4 children. He has a BS/BA in Business Administration and Computer Science. He currently lives in Charlotte, NC, and is professional soccer coach with the Charlotte Soccer Club.
David is currently a finance and supply
chain consultant. Previously he held senior management positions with
responsibilities for accounts receivable and financial
management processes for Energizer Battery, Inc. and Playtex
Products. David also worked for the Hershey Company in progressive
finance and supply chain roles.
A DVT and multiple pulmonary embolism survivor, David also serves on
boards for a non-profit assisted living facility and his community
maintenance corporation. He holds an AA in economics, a BA in
organizational management and an MBA. David divides his time between his
residence in Bear, Delaware and a second home near the Delaware beaches
with his wife, Michele, and their flat coat retriever, Chloe.

Tom had been serving in the U.S. Navy's Submarine Force when he suffered an unexplained DVT in 1992 that was accompanied by a PE. After 6 months of Coumadin therapy, he was returned to full duty. In 1995, he experienced a second unexplained DVT. In 1996, he was diagnosed with homozygous factor V Leiden and high homocysteine levels. Now retired from the Navy, Tom, his wife and 2 children live in Connecticut. Both his children are heterozygous for factor V Leiden.

Mark is a business development executive with extensive consulting and project management experience in the pharmaceutical industry. Mark, his wife Georgianna and 2 of their 3 children have the Factor V Leiden gene mutation.
Lynn suffered from DVT and a PE in 2003 after which she was diagnosed with Antiphospholipid Antibody Syndrome, a rare autoimmune disorder characterized by recurring blood clots. Lynn currently receives anticoagulation treatment and consultation at The University of Colorado Health Sciences Center in Denver. She became involved in NBCA at the end of 2003.
Lynn has over 8 years of marketing and event coordination experience. Besides serving on the NBCA Board of Directors, she serves as Co-Chair of the Education Committee, member of the Communications Committee and as NBCA's Volunteer Coordinator. She is dedicated to spreading awareness about thrombophilia and offering support to other blood clot sufferers and their families.
Lori is
an MBA graduate from the Johns Hopkins University and has over 10 years of
development and event planning experience. Lori was diagnosed with
homozygous Factor V Leiden during her pregnancy in 1999. She is passionate
about raising awareness of blood clots as members of her family have
experienced DVT, PE's. Both of Lori's daughter's have the FVL gene
mutation.
Stephen Rodner is a partner in the firm of Pryor Cashman LLP in New York City. He specializes in copyright, entertainment, trademark and intellectual property law. He is a member of the Copyright Society of the USA and the International Trademark Association,
the executive committee of the Entertainment Arts and Sports Law Section of the New York State Bar Association, Co-Chair of the motion picture committee and Chairman of the Board for Music For All Seasons.
Stephen has written articles on multimedia and entertainment legal matters for the New York Law Journal, Video Business Magazine and Hollywood Reporter ESQ and has lectured at multimedia and entertainment law conferences. He earned his BA from Columbia College and an LLB from NYU Law School. He was an adjunct professor of copyright and entertainment law at New York Law School. And, he has offered pro bono legal assistance to many non-profit organizations. As both a thrombosis and thrombophilia patient, Stephen is committed to NBCA’s mission to increase public awareness of clotting disorders.
Traci
Wilkes is an agent at Willinger Talent Agency, Inc. where she represents
news anchors, hosts, correspondents, sports and weather anchors at networks
and local stations in top 30 markets throughout the United States. Traci
obtained her Juris Doctorate from Rutgers School of Law. She is a
member of the New York and New Jersey Bars and began her legal career as an
associate at the law firm of Arent Fox, LLC in New York. Traci serves on the
Board of Directors of the National Blood Clot Alliance as the Vice
President. Traci survived a DVT and Pulmonary Embolism when she was
just 25 years old. Traci enjoys spending time with her husband Charles
Smith and their daughter Zoë.
Alan
Brownstein is the Chief Executive Officer of the National Blood Clot
Alliance (NBCA). Since 2007, over $5 million has been raised with an
emphasis on education programs for patients/families, health professionals
and the general public as well as programs of support and chapter
development directed at achieving targeted health behaviors and outcomes.
For 30 years, Brownstein has combined his business/strategic planning skills and expertise in public health programs and policy to provide leadership in developing and growing health organizations and shaping health policy/regulation in the U.S. Brownstein held the position of President/CEO of the American Liver Foundation and as the CEO of the National Hemophilia Foundation. Brownstein has also held executive positions as the head of a national trade association, hospital administrator, registered lobbyist and state official in health planning/regulation.
Brownstein has a number (40+) of scientific, health policy and management-related publications and has presented testimony before congressional committees, regulatory agencies and state/local legislative bodies.
Brownstein has served on a number of national boards. He has a Masters of Public Health degree from the University of Michigan.
Pat Sanders is the Assistant Treasurer of the National Blood Clot Alliance (NBCA). Pat is a CPA, who obtained her Accounting Degree from Franklin University and worked as a CPA for many years until 2008 when she retired.
She learned of the NBCA following the death of her 25 year old son, Nicholas (Nick), from a pulmonary embolism in August 2007. Following his death they learned that he had Factor V Leiden.
Pat and her husband Dan, have two sons Eric and Nicholas. Eric and his wife have a son named Graham and are expecting a daughter in October. Pat, Eric, and Nick have Factor V Leiden.