Patient Stories

I had my first pulmonary embolism in 2021 and my second PE along with deep vein thrombosis in 2025. The first time around, I experienced sudden chest tightness, shortness of breath, and coughing up blood. The second time, I had woken up to severe calf pain. Both times, my symptoms were constantly invalidated by doctors…

I got home from work and found it very painful to walk up the stairs. It felt like I pulled my groin. The next day I was supposed to see my mom for her birthday, but I could not get out of bed because I couldn’t move my legs. My mom told me to call…

I’m Jason Armitage’s mother, Faye. I’m writing this because he is severely disabled: paralyzed from the nose down and speech impaired. Blood clots in young people often get misdiagnosed and symptoms are routinely dismissed, as was the case when we visited the ER after a soccer game with then-7-year-old Jason. He had collided …

As told by Angela’s daughter, Mallery. My mom passed unexpectedly in September 2024. She had been sick for a few days and finally decided to go to the ER. They did scans and found massive blood clots in her lungs. They were about to med-flight her when she passed away within 1.5 hours of arriving…

On September 30, 2023, I was driving up a mountain to a fall festival near my home in West Virginia with my husband and parents when I began having difficulty breathing, and my heart started racing. By the time we stopped, I could not breathe deep enough and almost passed out. I had to sit…

I’ve been living with DVTs and PEs since the age of 15 when my calf pain was misdiagnosed as arthritis. I’ve never taken birth control and, to my knowledge, there is no family history of clotting disorders. I’m now 46, and honestly, I’ve lost count of how many blood clots I’ve had—including a saddle PE.…

I have always been an avid runner. In August 2024, I was training for my seventh marathon when I developed pain and swelling in my left leg. I thought I had strained my calf and did physical therapy, but I didn’t make any progress. I attempted the marathon but ultimately dropped out at mile 8…

I took oral birth control starting at age 18 until 33, when I got pregnant. I delivered twin boys by C- section in May 2024 and resumed taking the same birth control shortly after. In September 2024, I noticed my left leg was swollen and began turning a dark red/purple color. I went to the hospital…

I went on a strenuous hike and my whole body was sore afterwards. A few days later, the soreness subsided everywhere except for my left calf. I thought I had a muscle strain injury. A few days later, the pain got worse, and I could barely walk, so I went to urgent care. I knew…

As told by Karlie’s mother, Celina. Last June, my 17-year-old daughter Karlie mentioned pain in her left leg. She was a dancer, and dancers always have pain: a pulled muscle, a pinched nerve, or sciatica. The pain increased and moved into her groin area. We treated it as the internet said: heat, ice, and elevate.…