Patient Stories
I’m Grateful to Be Alive, But the Health Anxiety is Very Real: Elizabeth’s Story
Two weeks after hip labral repair surgery, my thigh became very sore. I assumed it was from new exercises in physical therapy, but a few days later my calf became painful also. I was having a hard time getting around, so I called my insurance company’s 24/7 nurse hotline in the middle of the night.…
I’m Not Taking My Life For Granted Anymore: Chelsea’s Story
I ran my first 5K in years the Sunday before all this happened. During the race, I injured my right knee. On Monday, I went to the doctor and was told to try rest, ice, compression, and elevation, and to use crutches for a few days. The first day on crutches wasn’t bad, but by…
My History is a Sequence of Crises: Whitney’s Story
I’m 27, and my story isn’t about being young; it’s about blood that doesn’t flow. My history is a sequence of crises. Two weeks postpartum, IVF hormones and an emergency C-section created the perfect storm. I was struck by shortness of breath, chest pain, and neck pain. Rushed to the hospital, they found a pulmonary…
Blood Clots Symptoms Mimic Other Things, So Be Careful: Hope’s Story
This May, I tore my calf muscle playing soccer. It was the same injury I had only three months earlier, so I thought I knew what to expect. Three days later, I had a massage and then left for Cuba that evening on a three-hour flight. My calf was sore and I had bought a…
My Goal is to Raise Awareness and Promote Healthy Blood Flow Habits: Megan’s Story
In June 2024, shortly after turning 30, I was diagnosed with an unprovoked blood clot in my lower left leg (deep vein thrombosis, or DVT). The diagnosis and the sudden need to start blood thinners felt like a death sentence. I was terrified and didn’t know where to turn. Once the clot was discovered, I…
Never Stop Advocating For Yourself: Nicole’s Story
On December 11, 2024, I went to the emergency room because my entire right arm was swollen. My father told me not to go since I wasn’t in pain and already had a doctor’s appointment scheduled for the next day, but something told me to get it checked out. I truly believed nothing serious was…
I Was Repeatedly Misdiagnosed and my Symptoms Were Dismissed: Liz’s Story
After a dilation and curettage (D&C), my doctor tore my cervix. I was given medication to stop the bleeding, but I passed out in the hospital from blood loss five days later. My doctor gave me tranexamic acid (TXA) to control the hemorrhaging. Later that day, I started feeling a burning sensation in my chest.…
Always Pay Attention to Changes in Your Body: Kristian’s Story
In May of this year, I took a short flight, only about two and a half hours one way, and soon after, I noticed a cramping sensation in my right calf. I assumed it was just soreness or dehydration, so I ignored it for a couple of days. When the pain didn’t go away, I…
The Fear of Another PE Still Lives in my Body: Caitlyn’s Story
It was a couple of days after traveling when I first noticed something wasn’t right. I had switched birth control pills within the last several months. At my first conference talk after COVID, I realized mid-presentation that I couldn’t quite get through full sentences without pausing for breath. I told myself it was just nerves.…
Advocate For Yourself: Fallan’s Story
In February 2025, while at work, I started developing a terrible headache, fever, chills, and body aches. I assumed I was coming down with the flu. I spent a day in bed watching TV and resting. Two days later, the flu-like symptoms subsided, but I developed stiffness and pain in my neck. Within 24 hours,…
