Patient Stories
Blood Thinners Need to be Available at a Lower Cost: Lydia’s Story
I had my first child in 1989 by C-section. Four weeks later, my left leg was hurting so badly that I could hardly walk. I went to the hospital and was told I had a blood clot in my left leg (DVT) and had to stay in the hospital for one month. This was hard…
I Knew Something Was Off: Sara’s Story
I ran my first marathon in April 2024 and eagerly began training for my second one. I quickly noticed that training was a lot more challenging than usual. I chalked discomfort in my shoulder up to lifting heavy weights in the gym and chest pain up to my sports bras being too tight. My heart…
It’s Common to be Misdiagnosed: Molly’s Story
In late September 2023, my left calf started aching mysteriously. The pain was radiating up and down my leg so I thought maybe it was a pinched nerve. It was getting hard to walk, so I did an online urgent care visit. I was diagnosed with muscle strain and told to wrap it, take ibuprofen…
Diagnosed With Five DVTs After a Scooter Accident: Xio’s Story
In March 2011, I had a C-section and developed a superficial clot in my left leg, My treatment was compression socks and I felt better after a week. Years later, on March 30, 2024, I had a fall from an electric scooter. All my weight fell on my left leg, but somehow, I got up…
My Doctor Dismissed My Leg Pain as Sciatica: Ashley’s Story
At 31 weeks pregnant, I was getting ready for the arrival of my baby when I started experiencing extreme pain in my left leg. I remember going to my baby shower and barely being able to walk. This was very concerning, so the next day, I called my OB/GYN and explained my symptoms. Unfortunately, she…
My Road to Recovery is a Lifetime Journey: Vanessa’s Story
In September 2022, a couple of weeks after undergoing an emergency appendectomy, I was woken up by an intense pain in my knee. It lasted a few minutes and then I went back to sleep. A few days later, the pain came back and spread to my thigh, and I could not put weight on…
Stay Resilient, Listen to Your Body and Advocate for Yourself: Lauren’s Story
In the fall of 2023, I was a healthy 21-year-old college senior busy with graduate school applications and interviews. I was working out multiple days a week and going to class, trying to enjoy my last year of college. One night, I went bowling for the first time in a while and woke up the…
Use This As Your Reason to Live: Tilly’s Story
It began with excruciating back pain and shooting pains up my left leg. I felt unable to walk. The week that I noticed my first symptoms, I was back and forth to urgent care and the doctors. They kept saying the same thing, “You have nerve damage” (sciatica). They gave me painkillers and told me…
We Must Be Advocates for Ourselves and Our Family Members: Marcus’ and Shannon’s Story
As told by his daughter, Shannon In April 2024, my father, a retired police lieutenant, was diagnosed with duodenal cancer. He was unable to have the tumor removed and was undergoing chemotherapy. In late August 2024, he started complaining about being dizzy and lightheaded. He went to his primary care provider who told him that…
I Was Blown Away By the PTSD I Felt: Donna’s Story
On Christmas Eve 2023, I slipped on ice and broke my kneecap. I spent eight weeks in a splint and kept my leg elevated. Two weeks later, I experienced shortness of breath and chest pain suddenly. I went to the ER and was diagnosed with a submassive bilateral PE with right heart strain. I spent…