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About Us

Vision

The National Blood Clot Alliance (NBCA) sees a future in which the number of people suffering and dying from blood clots in the United States is reduced significantly.

Mission

The National Blood Clot Alliance (NBCA) is a 501(c)(3), non-profit, voluntary health organization dedicated to advancing the prevention, early diagnosis and successful treatment of life-threatening blood clots such as deep vein thrombosis and pulmonary embolism.

NBCA works on behalf of people who may be susceptible to blood clots, including, but not limited to, people with clotting disorders, atrial fibrillation, cancer, traumatic injury, and risks related to surgery, lengthy immobility, child birth and birth control.

NBCA accomplishes its mission through programs that build public awareness, educate patients and healthcare professionals, and promote supportive public and private sector policy.

Organization

The National Blood Clot Alliance (NBCA) is a patient-led, voluntary health advocacy organization.
NBCA volunteers include many of the nation’s foremost experts on blood clots and blood clotting disorders.
NBCA programs include patient education and professional training about the signs, symptoms, and prevention of blood clots and clotting disorders.
The organization is a member of both the Thrombosis and Hemostasis Societies of North America and the National Health Council.
NBCA combines the unique perspectives of healthcare providers, individuals afflicted with clotting disorders, and community leaders who are passionate about this healthcare crisis.
NBCA’s Medical and Scientific Advisory Board (MASAB) includes nationally recognized experts in thrombosis and thrombophilia.

The Founding of NBCA

NBCA’s founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop hosted by The Centers for Disease Control and Prevention in 2003. Sharing a common concern, they resolved to build a national organization to advocate for — and to educate and support — those affected by clotting disorders. Each Board member at that time, and most still today, have been touched personally by blood clots, or such genetic variants as the factor V Leiden gene mutation.

NBCA Objectives

Prevent thrombosis and its complications
Reduce death and illness related to thrombosis
Assist in establishing guidelines for prevention, treatment, and management of blood clots
Promote funding for and establishment of comprehensive thrombophilia programs to allow every patient access to thrombosis specialists within a reasonable distance where patients live
Promote and assist scientists with research efforts relating to all aspects of thrombosis and thrombophilia
Encourage activities to increase the number of specialists in thrombosis and thrombophilia, such as endowing training fellowships
Initiate and promote educational activities for the medical and patient community, and for the public
Create a national policy agenda and a grassroots advocacy network