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New Patient Resource Guide

Last updated May 21, 2024

If you have been diagnosed with a blood clot, you know that this is a life-changing experience and can be upsetting and confusing. You may be asking yourself: What is a blood clot? How did this happen to me? Will I be okay? Will my life ever be the same? These are important questions that deserve to be answered. The National Blood Clot Alliance (NBCA) developed this guide for newly diagnosed patients and their caregivers to help answer common questions and provide the resources to help you navigate life, post-diagnosis. Blood clots can be deadly, but you are a survivor.

What is in the New Patient Resource Guide?

What is a Blood Clot?
Blood Clotting Disorders (Thrombophilia)
Genetic Testing for Thrombophilia
Blood Clot Recovery Timeline
Medical Team
Blood Clot Treatment
INR Testing
How to Prevent a Recurrence
Blood Clot Complications
Healthy Lifestyle
Questions to Ask Your Doctor
FAQs
NBCA Resources

New Patient Resource Guide

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New Patient Resource Guide (Spanish)

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*Hard copies are only currently available in English.

If you are a healthcare provider or part of a hospital or organization who sees VTE patients, get hard copies of our New Patient Guide for your clinic at no charge – just pay shipping. Blood clot patients receive little to no information after a diagnosis in the hospital – you can help change that! It’s easy:

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NBCA Additional Resources

NBCA is here for you. If you have any questions, please do not hesitate to send an email to info@stoptheclot.org. You can also connect with NBCA on Facebook, Twitter, Instagram, and LinkedIn. Join our NBCA Facebook support group or register for our monthly virtual patient support group, PEP Talk: Patients Educating Patients to learn how.