GAITHERSBURG, Md., June 23, 2020 — A majority (55 percent) of Americans aged 18 and older currently prescribed anticoagulant medications (blood thinners) report that they very much or somewhat fear experiencing a life-threatening bleed and 73 percent say that they are more cautious about routine activities since being prescribed blood thinners, according to the results of a survey released by the National Blood Clot Alliance (NBCA). Among the 55 percent who said they fear major bleeding, nearly three-quarters (72 percent) say this concern has impacted their quality of life.

More than eight million people in the United States are currently taking a blood thinner medication¹. Blood thinners can save lives, helping to treat and prevent dangerous blood clots, but can also pose a potentially serious side effect: Bleeding. Since blood thinners slow the clotting of blood, unwanted and sometimes dangerous bleeding can occur with the use of these medications².

“More and more people are living longer, more active lives, well into retirement. Many of these same people, particularly as they age, are prescribed blood thinners – medications that save countless lives every year, but which can carry the potential risk of life-threatening bleeding,” said Michael B. Streiff, M.D., FACP, Johns Hopkins Medical Institutions. “The results of our survey demonstrate that people are making lifestyle decisions – possibly avoiding activities and hobbies they love – such as gardening or exercising – because they are afraid of experiencing serious or dangerous bleeding as a side effect of their blood thinning medication.”

While the survey results point to the fact that people prescribed blood thinners do have concerns about severe bleeding, the good news is that the survey results show they are talking to their doctor about their risks. A full 95 percent of survey respondents indicated they are having or have had at least one discussion with their physician about the risks and side effects of their medication, with 41 percent saying they have this discussion during every physician visit.

“I understand the benefit or importance of my blood thinning medication, but also recognize the bleeding risks associated with it,” said Caroline Bernal-Silva, who has been on a blood thinner medication for 11 years. “I discuss my lifestyle, my routines, and all my activities every time I visit my doctor. My doctor has been very helpful in providing information and tools to help me minimize my risk of bleeding, but I do remain concerned, particularly when I’m traveling or vacationing in remote places.”

The NBCA survey, fielded in February 2020 among 500 Americans who are currently prescribed a blood thinner, had several central findings:

• Cautious about Routine Activities – People surveyed who reported being more cautious about routine activities since being prescribed their blood thinner medication are more careful when:
  • Cooking or preparing food with knives or other sharp kitchen tools – 64 percent
  • Shaving – 62 percent
  • Going barefoot – 53 percent
  • Brushing teeth or flossing – 49 percent

• Cautious about Leisure Activities – People surveyed who reported being more cautious about leisure activities since being prescribed their medication are more careful when:
  • Gardening – 62 percent
  • Working out at the gym or exercising – 43 percent
  • Traveling – 39 percent
  • Playing with children or grandchildren – 36 percent

• Trying New Activities – 42 percent of those surveyed indicated that the risk of major bleeding has discouraged them from trying new activities

• Fear – 55 percent of survey respondents indicated they live with a fear of a major bleeding incident and, of those people, nearly three-quarters (72 percent) have indicated that that fear has impacted their life

• Travel – A significant majority (89 percent) of those who indicated they would be more cautious about traveling since being prescribed blood thinners said they would be more likely to travel if they knew there were hospitals nearby that had medicines to stop or reverse a major bleed

“Our goal is always education and awareness. With this survey, our aim is to help people better understand and have confidence in the important treatment decisions that surround their care, and to stimulate important discussions with doctors, which we were particularly gratified to see are happening, because it is crucial that any unusual bruising or bleeding always be discussed with a doctor immediately,” said Dr. Streiff. “Make no mistake about it: Blood thinners save lives. But all medications have risks. What’s important is to understand the risks, and to really understand how, or if, any of the activities you love could increase your risk for serious bleeding. It’s also important to understand how, depending on the type of medication you are taking, a bleeding incident can be treated quickly.”

RESEARCH METHODOLOGY

The Bleeding Risk Awareness Survey was conducted online by Wakefield Research among 500 U.S. adults 18 and older prescribed a blood thinning medication, between February 10 and February 21. The margin of error was +/- 4.4%.

Funding for this survey was underwritten by Portola Pharmaceuticals.

ABOUT NBCA

NBCA is a 501(c)(3), non-profit, voluntary health organization dedicated to advancing the prevention, early diagnosis, and successful treatment of life-threatening blood clots. NBCA works on behalf of people who may be susceptible to blood clots, including, but not limited to, people with clotting disorders, atrial fibrillation, cancer, traumatic injury, and risks related to surgery, lengthy immobility, child birth, and hormonal birth control. NBCA accomplishes its mission through programs that build public awareness, educate patients and healthcare professionals, and promote supportive public and private sector policy.

To learn more about blood clot risks and also the signs and symptoms of blood clots, visit www.stoptheclot.org/guide

Press contacts

Laura Ryan 
Ruder Finn—PR for Portola ryanl@ruderfinn.com 914.400.4054

Lisa Fullam 
National Blood Clot Alliance lfullam@stoptheclot.org 703.935.8874

¹ IBM Truven Health Analytics, 12 months ending December 31, 2018 for Commercial, Medicare and Medicaid patients (October 24, 2019)

² The National Blood Clot Alliance. Accessed June 15, 2020. https://www.stoptheclot.org/living-your-best-life-while-taking-blood-thinners/