About Us
…have been touched personally by blood clots, or such genetic …
Variants of the Virus that Causes COVID-19
Vaccination against COVID-19 is now made all the more important due …
Keep Finding Joy in Little Things: Arielle’s Story
…mutation. My endometriosis surgery, birth control usage and long flight are also believed to be factors that contributed to my clots. These experiences have made me more grateful for breath….
I Felt Like I was Crying Wolf: Anya’s Story
…The results are still inconclusive despite knowing about the estrogen in my birth control. This led to discussions about a potential genetic mutation. Yet, I was simply told I would…
A Constant Headache Was a Sign of Something Serious: Marjorie’s Story
…V Leiden heterozygous mutation. I was fine, except I suffered from migraines. My migraines were so bad that I couldn’t walk straight, and I would lose vision in my right…
I Almost Left the ER: Lucy’s Story
…OB/GYN. who tested me. I tested positive for FVL and have the factor II mutation. I made my parents get tested. Both of them have clotting disorders. I now know…
Birth Control Caused a Blood Clot in My Lung: Lucy’s Story
…a MTHFR mutation with high levels of homocysteine, which increased my risk of clots. It was also determined that my clots were resultant of estrogen increasing the activity of coagulation…
The Road Trips That Changed My Life: Cydnee’s Story
…for six months and recommended I get tested for a clotting disorder. It came back as positive for factor V Leiden mutation. I am in the process of encouraging my…
Board of Directors and Officers
…year on anticoagulant therapy. Years later, Jessica discovered …
The Medical Profession has a Long Way to Go: Joel’s Story
…I have the factor II mutation heterozygous. My family members haven’t been tested because their insurance doesn’t cover it and they can’t afford it. My advice is to advocate for…