Understanding Genetics of Thrombophilia / Inheritance & Testing
…related to genetic testing: Antiphospholipid …
My APS Diagnosis Got Lost: Dione’s Story
In 1994, I had my son prematurely at 24 weeks. They did a bunch of testing and found out that I had antiphospholipid syndrome (APS). I had another preterm baby…
Newsletters
…The Clot Trot: Mike Beamesderfer’s Story An Opportunity to …
Take Advantage of the Support Available: Tammillia’s Story
…I have answers. I’m currently awaiting blood test results to find out if I have lupus anticoagulant / antiphospholipid syndrome. I feel like my youth and confidence have been taken…
Patient Input Needed for New Study Involving APS
…persons with antiphospholipid syndrome. The team …
If You Aren’t Happy With the Answers, Keep Pushing: Ria’s Story
…antiphospholipid syndrome (APS), and have recently begun on lifelong warfarin. This has changed my life and my lifestyle hugely. It took me months to breathe somewhat normally, I couldn’t be…
Volunteer Spotlight: Megan and Doug Sloyer
About 12 years ago, Megan was diagnosed with a pulmonary embolism (PE) and two clotting disorders – factor V Leiden (FVL) and antiphospholipid syndrome (APS). Since then, she has experienced…
June e-Newsletter | Summer Months, Summer Fun
…add blood clot prevention to the list of things to do before …
My Teen Suffered a PE After Surgery: An Anonymous Parent
…positive for antiphospholipid syndrome (APS). Advocating for a medically complex teen gets easier after a near-miss event, but that shouldn’t have to be the case. NBCA has been extremely helpful,…
Another Chance at Life: Rachael’s Story
…were no known risk factors that contributed to them. Additional testing disclosed the reason for the clots. I was diagnosed with an autoimmune clotting disorder called antiphospholipid syndrome, or APS,…