Blood Clots Were My Greatest Fear: Ashlee’s Story
…oral anticoagulant, and I am waiting to do genetic testing to see if I have any underlying risk factors. I have the MTHFR gene mutation, but I am not sure…
10 Years After My Factor V Leiden Diagnosis: Deirdre’s Story
…I have a blood clotting condition called Factor V Leiden — the gene mutation was only discovered a year or two earlier. The doctor in the hospital told me I…
Every Fundraiser is a Lifesaver: Sarah Henley’s Candles Raise Blood Clot Awareness
…by the combination of increased estrogen from hormonal birth control and postpartum, as well as obesity. Blood tests later showed she also has factor V Leiden, a genetic mutation that…
A Family Affair: Kathy’s Story
…mutation on to my daughter, Elizabeth Varga, who did her master’s thesis on the topic as she completed her degree in genetic counseling. She later served on the executive board…
My Saving Grace: De’Shawn’s Story
…I have a blood clotting disorder called Factor V Leiden, which I had never heard of. It’s a gene mutation you inherit from one or both of your parents. Needless…
Cancer Was My Main Risk Factor for Blood Clots: Heidi’s Story
…genomic testing, I found I had a pik3ca mutation, which has been treated with an oral chemotherapy drug for over a year now. Shortly after starting the drug, I flew…
Increasing Awareness of Factor V Leiden: Elizabeth Varga’s Story
I discovered that I was heterozygous for the factor V Leiden mutation in June of 2000 after my mother tested positive during a workup for superficial thrombophlebitis. My primary care…
My Blood Clot Experience as a Professional Fireman: Pat’s Story
…circulation. My doctors and I did some family research and found out I have a rare blood mutation, and a DVT with the largest baker’s cyst in my left leg….
I Developed a Blood Clot While on an Anticoagulant: Linda’s Story
…body. Know the symptoms and risks. You could save your life or the life of a loved one. Resources MTHFR Mutation Resources Psychological Impact of Blood Clots Know Your Risk…
I Never Thought it Could Happen to Me: Mariah’s Story
…days for testing and observation. I was immediately prescribed Coumadin® (Blood thinner or anti-clotting medication) and compression stockings. I found out that I have the Factor V Leiden mutation (a…