Patient Stories
I Was Blown Away By the PTSD I Felt: Donna’s Story
On Christmas Eve 2023, I slipped on ice and broke my kneecap. I spent eight weeks in a splint and kept my leg elevated. Two weeks later, I experienced shortness of breath and chest pain suddenly. I went to the ER and was diagnosed with a submassive bilateral PE with right heart strain. I spent…
I Developed PTSD From This Experience: Autumn’s Story
In September 2024, I went on FMLA and short-term disability due to severe pain in my leg that was assumed to be a hamstring and calf cramp issue. Less than two months later, on Nov. 14, 2024, I had the biggest scare of my life. I woke up that morning and went to let my…
We Need More Voices, But Too Many of Us Aren’t Lucky Enough to Share Our Stories: Kyra’s Story
When I gave birth to my son, I was so excited to be a parent. But I began having headaches that were not normal. In the hospital, I was given medication to clot my blood because of slightly more than average blood loss. I was also given extra blood pressure checks because my blood pressure…
If Something Feels Off, Get It Checked Out: Emily’s Story
When I went in for hip surgery to repair my labrum — a ring of cartilage in the hip that stabilizes and cushions the hip joint — I was excited. After two years of limited mobility, I couldn’t wait to get back to the active lifestyle I loved. I’d likely injured myself training for triathlons,…
Never Let Embarrassment Stop You From Getting Help: Briar’s Story
I am a healthy 23-year-old woman and had never experienced any real health concerns. I walk the same route every morning to work, but on this particular morning, I was out of breath almost instantly. When I sat at my desk, I was still unable to catch my breath. It felt like the air was…
I Dealt With Pain and Swelling For Five Years: LaVon’s Story
After leaving the gym in 2017, I experienced the worst pain imaginable in my right leg without having an injury. I thought maybe the pain would leave after icing and elevating it. But, as the day went on, the pain and swelling worsened to the point I couldn’t stand or walk on it. I went…
I’m Grateful For My Team of Doctors and My Dog Kiko for Saving My Life: Esmaralda’s Story
I had my first DVT and PE almost five years ago at 21 years old. My leg was hurting, but I kept ignoring it. When my dog Kiko started sniffing my leg and whining, I felt that something was wrong because that was unusual behavior for him. I went to urgent care, and they sent…
Honoring My Daughter’s Memory Through Advocacy: Amara and Megan’s Story
As told by Amara’s mother, Megan. My story is about my daughter Amara. She was a vibrant, free-spirited 14-year-old artist full of aspirations. Her life was tragically cut short on January 9, 2020 by a pulmonary embolism just three weeks after she was prescribed birth control pills to control her acne. When Amara was prescribed birth…
Blood Clot Survivors Can Do Anything: Charles’ Story
In the summer of 2012, I was training hard, running, lifting weights, and eating clean. My goal was to be in my best shape for my best friend’s bachelor party in Las Vegas on Labor Day Weekend. My wife and I also took a trip to Europe. I was running along cobblestone streets and swimming.…
Trust Your Instincts and Advocate For Your Loved Ones: Christian and Leah’s Story
On January 19, 2024, I received a call from my 13-year-old son, Christian. He was struggling to breathe. He’d been unwell for weeks, starting with an unknown virus that had progressed to pneumonia. Just the day before, he was diagnosed and treated in an ER. We took him back, assuming his breathing issues were a…
