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I Was Fortunate to Have Survived This: Joe’s Story

I Was Fortunate to Have Survived This: Joe’s Story

In June 2017, I noticed a pain in my left calf. I had been walking several days a week, so I thought I may have pulled a muscle. I spent time trying to stretch it out over the next week, but it persistently got worse.   

The pain I had been having in my calf then moved to my groin. The next morning, two weeks before my 50th birthday, I began experiencing breathing issues and an extremely rapid heart rate.   

I called my wife and said, “I need to go to the hospital. I may be having a heart attack.” She called a close friend who is a doctor, who then called the ER. They were ready for us and began a scan of my left leg. Doctors were astounded that I had a clot going all the way from my groin to my ankle.   

After many enoxaparin sodium injections, my heart rate still would not come down. I was going into atrial fibrillation, an irregular and often very rapid heart rhythm (arrhythmia) that can lead to blood clots in the heart.   

I began to go into hemodynamic collapse, which causes insufficient blood flow in the body. They knew something more serious was happening and gave me a CT scan, where they found six clots in my lungs (pulmonary emboli, or PE), one being a massive saddle PE.  

They performed a thrombolysis, which uses medication to break up blood clots and prevent new ones from forming. I was fortunate to have survived this and am extremely thankful for the doctors and nurses that cared for me.  

Testing showed I have factor V Leiden and MTHFR (as does my son and daughter) which are believed to have contributed to my blood clots. I’m now on apixaban twice daily and will be for the remainder of my life. I am also much more aware of the need to stop, move, and stand when traveling.  

I wish I had known the warning signs of a blood clot earlier. The NBCA does a great job of educating people about the signs and symptoms, and I try to share that information with as many people as possible. 

Resources

Factor V Leiden Resources
Living Your Best Life on Blood Thinners
Signs and Symptoms of Blood Clots

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The personal story is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.

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