I suffered a massive saddle pulmonary embolism as well as multiple smaller PEs, some of which are now chronic, in October 2022. My event was provoked by an unsuccessful vascular ablation that left my great saphenous vein partially open and Covid 19.
Two years later, I still experience intermittent chest tightness and fatigue. After an extensive cardiac workup last year, including right and left heart catheterization, I received a diagnosis of chronic thromboembolic disease (CTED). My pulmonary pressures are borderline and I’m closely monitored by the Pulmonary Hypertension Unit here in Dublin, Ireland.
I have an upcoming CPET test (cardiopulmonary function) to check my pulmonary pressures while under exertion. This will determine if I need to undergo any treatment in Cambridge, UK, as Ireland doesn’t have the required medical facilities to treat this chronic condition.
I have my own oximeter and my oxygen saturation averages at 98%. I underwent two surgeries this year under general anesthesia and thankfully, no issues were reported. I’m a rivaroxaban lifer, currently on 20mg which will soon be reduced to 10mg minimum.
I have had severe anxiety and PTSD since receiving my blood clot diagnosis. I’m currently on a three-month medical leave from work because of my mental health.
Unfortunately, this isn’t factored into aftercare in this country and you’re left to figure it out for yourself. I’m currently working through that. I also struggle with menstruation as I bleed and cramp a lot on rivaroxaban. I have to take tranexamic acid to balance this.
On the bright side, I’m back in the gym with a new personal trainer and my new addiction is Pilates. I also bike and walk as much as I can. I refuse to let this control my life any longer.
I’m alive, healthy, grateful for each day, and passionate about spreading much-needed awareness.
Resources
Psychological Impact of Blood Clots
Living Your Best Life on Blood Thinners
About Clots
