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Blood Thinners Need to be Available at a Lower Cost: Lydia’s Story

Blood Thinners Need to be Available at a Lower Cost: Lydia’s Story

I had my first child in 1989 by C-section. Four weeks later, my left leg was hurting so badly that I could hardly walk. I went to the hospital and was told I had a blood clot in my left leg (DVT) and had to stay in the hospital for one month.

This was hard for me, especially with a new baby. In the hospital, they would not let me get out of bed until my third week. When I was able to leave, the doctor told me I had to be on warfarin and could never have a job standing up or sitting down for a long time.

Since then, I have had five blood clots in my left leg, four in my right leg, and a pulmonary embolism. I had an IVC filter placed about five years ago. The filter was full of blood clots and they had to go in and remove them.

I can’t stand up or sit down for long because my legs will start hurting and increase my chances of getting a blood clot. My left leg is bigger.

I am on rivaroxaban now, which is a better medicine, but the cost is the main problem. Three years ago, I tried to spread my medication over days. I ended up with another blood clot in my left leg and was hospitalized for four days. Rivaroxaban needs to be available at a lower cost.

Resources

Savings Programs for Anticoagulants
Know Your Risk
Signs and Symptoms

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The personal story is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.

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