Patient Stories
Recovery is Not Linear: Desiree’s Story
In April 2021, I was diagnosed with a cerebral venous sinus thrombosis. I was fortunate enough to have been diagnosed quickly following three days of headache, nausea, and vomiting. My risk factor was estrogen based oral contraceptives. This diagnosis has taken a physical and emotional toll, but I am thankful for where I am. I…
Two Blood Clots 10 Years Apart: Priyansh’s Story
I was diagnosed with a pulmonary embolism in 2013 as a side effect of steroids I was taking for nephrotic syndrome, a kidney disorder. I was on warfarin for two years until my doctor advised me to stop taking it. In March 2023, I had sudden pain in my left leg that was the worst…
The Doctor Didn’t Think I Would Live: Tabitha’s Story
It was one of the most exciting times! After six long weeks of wearing an air cast, I had just received news that I could get it removed. I told the doctor that my leg had been cramping, but he said it should subside once the cast was off and I moved around. Later that…
Finally Making Gains: Gerry’s Story
I’m a survivor of two pulmonary emboli. I’m finally making gains to restore “normal life” after years of small gains and constant setbacks. Before my pulmonary emboli in January 2016, I was healthy and ran lots of races. I thought it was an isolated incident and I wouldn’t get another one. It’s strange how life…
I Had No Idea That the Pain in my Knee Was a Warning Sign: Mark’s Story
About a week after having an arthroscopy on my left knee, I was icing the top of the knee and commented to my wife that I really should be icing the back of my knee. What I did not know at the time was that the back of the knee hurt because I was passing…
Blood Clots in the Arm are Rare, But I Had One: Kiersten’s Story
About 15 years ago, my dad had a blood clot in his leg (deep vein thrombosis) and testing showed he had factor V Leiden. Since it’s a genetic disorder, my two sisters and I got tested. I tested positive for factor V Leiden as well as one of my sisters and one did not. So,…
My Diagnosis Was Cortical Venous Thrombosis in the Vein of Labbe: Oscar’s Story
My blood clot experience started with an intense fever and headache that lasted five days before I was hospitalized. On July 26, 2023, I was leading a work call when I suddenly became unable to pronounce the words on my computer screen. My girlfriend and our housemate took me to the emergency room, and as…
It Started as Leg Pain: Rusty’s Story
It started as a sharp pain in my leg when I walked. I thought it was from my shoes, or maybe I had bruised my foot at some point. After about a month of these symptoms, my other leg started to swell and turn red. My wife, who is a nurse, and my doctor both…
Go to the Hospital Instantly If You Have DVT or PE Symptoms: Bogdan’s Story
I played soccer for 20 years until January 2023, when I had a muscle rupture in my thigh, which kept me away from training and matches. At the end of April, I had a throat infection. Within a few days, I was experiencing shortness of breath and felt tired after taking a few steps, but…
Water Aerobics Keeps the Swelling Down: Gus’ Story
I woke up one morning in 1978 to find that my right leg was swollen to twice its size. I called my doctor, who told me to come in immediately. He pressed his thumb into my ankle and created a ½-inch dent to show me how swollen I was and sent me to the hospital.…
