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Patient Stories

My Hospital Stay Contributed to My Blood Clots: Krista’s Story

I started 2020 with a three-level spinal fusion surgery in my lower back. I recovered for about five days in the hospital. During that time, I was given conflicting information: The nurse told me to get up and walk, and the doctor told me to lay flat and move as little as possible.   I remember…

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I Was Told My Pain Was a Pulled Muscle: Giggie’s Story

I was 22 and two weeks postpartum after having a complicated delivery of my first and only baby. I began having intense back pain when breathing or moving, so I contacted my midwives, OB/GYN, and PCP. They all told me that it was a pulled muscle and prescribed muscle relaxers.    I took one dose and…

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Blood Clots are a Huge Problem in the Postpartum Community: Lindsay’s Story

A few days after delivering my second child in February 2021, I found myself back in the hospital with stomach pain and a fever. A CT scan revealed a massive blood clot in my inferior vena cava, the largest vein in the abdomen that collects unoxygenated blood from the lower body and brings it to…

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I Thought I Was Having a Heart Attack While Holding My Newborn: Megan’s Story

When I was 37 weeks pregnant with my first child, I began experiencing a painful, pressurized cramping sensation in my upper thigh that was dismissed by three different OB/GYNs during my weekly appointments. They assured me it was just the baby putting pressure on nerves and ligaments in my pelvis.    However, at 17 days post-delivery…

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I Want To Raise Awareness Among Pregnant Women: Hannah’s Story

I was 24 weeks pregnant when I learned I developed a bilateral pulmonary embolism (PE). I had been suffering from shortness of breath but had no other symptoms. Blood clots aren’t in the family, and I am young, fit and healthy, so my midwife was certain I wouldn’t have this condition.   She referred me…

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I Developed a DVT During Childbirth in the 12 Hours I Was Off My Blood Thinner: Maggie’s Story

I developed my first blood clot at 16 years old, a massive deep vein thrombosis (DVT) in my left leg, extending from the middle of my shin to my belly button. Unfortunately, this clot resulted in multiple pulmonary emboli (PE), both caused by oral contraceptives.   I developed another DVT at eight weeks pregnant, even…

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I Was Told I Was Having an Anxiety Attack: Angie’s Story

On November 24, 2022, I went to the ER for an emergency C-section due to my high-risk pregnancy. During my whole pregnancy, I was told about the “uncommon” issues a woman can experience, and I got almost everything “uncommon” that I was warned about.    My pregnancy was far from what I dreamed of. After having…

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I Thought I Was Having a Bad Panic Attack: Britney’s Story

I had been feeling like I was “dying” since around February 2016. I felt hopeless and constantly tired. My heart would skip beats, and exercising made me dizzy. I attributed most of my symptoms to anxiety and depression. And I was also in a very intense graduate program that caused me lots of extra stress.…

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I Remained on Life Support For Four Days: Felecia’s Story

On March 11, 2021 I woke around 2 a.m. to use the restroom and I suddenly couldn’t see. I realized my night shirt was over my eyes and I was upside down. I had passed out. I sat on the floor with a leg on each side of the toilet and tried to figure out…

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I Had Three Large Blood Clots in my Brain: Jessica’s Story

In November 2016, I was at a wedding when my head started hurting. I took Tylenol, but it wouldn’t go away. In fact, it was getting worse. A couple of days later, my head hurt when I tried to turn, and I started getting pain behind my right eye and down the right side of…

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