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Patient Stories

This Needed More than a Tylenol Prescription: Ashley’s Story

At 31 weeks pregnant, I was getting ready for the arrival of my baby when I started experiencing extreme pain in my left leg. I remember going to my baby shower and barely being able to walk. This was very concerning, so after the baby shower, I called my OB/GYN and explained the symptoms I…

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A Challenging Series of Miscarriages: Janelle’s Story

In 2011, I became pregnant with my fourth child and went in for what I thought would be a normal 8–12-week doctor’s visit, but instead they told me that I was having a miscarriage. This was confusing and devastating news that was challenging to process. I could not understand why I was having a miscarriage…

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A Combination of Missed Risk Factors: Gina’s Story

In 2017, at 21 years old, I was undergoing my third surgery on my left knee after I had torn my ACL and meniscus playing college basketball. I was back on the court a few short weeks later, but felt that my hamstring was unusually tight. This didn’t seem right to me, so I decided…

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Mamas Get Blood Clots Too: Justine’s story

I had my first blood clot when I was 24 years old after ACL reconstruction surgery — a risk factor for blood clots that I was unaware of. After my surgery, I noticed that my arm was warm, swollen, and red, all signs of blood clots. I knew something was off, and decided to go…

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Living with Post-Thrombotic Anxiety: Holly’s Story

I had my first pulmonary embolism (PE) at the age of 30. My symptoms began with prolonged shortness of breath for about six weeks. There were many days when I woke up unable to breathe. I disregarded this symptom because I assumed I was just out of shape. However, my shortness of breath got progressively…

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Blood Clot Survivors Can Do Anything: Ashley’s Story

In December 2013, I joined a local gym after just moving to a new area. I spent a lot of time doing group classes and walking on the treadmill. One day while I was walking, I looked down and noticed some swelling in my lower left leg. I figured the swelling was just from the…

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I Had No Idea Pregnancy and Childbirth Were Risk Factors: Bailey’s Story

In September of 2020 at the age of 21, I was pregnant with my son during what appeared to be a perfectly normal pregnancy. Thankfully, I delivered a healthy baby boy. But just two days later, I began experiencing significant swelling in my left leg. I knew it was normal for pregnant women to retain…

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This Was Not About Getting Older: Joyce’s Story

In July 2019, I began experiencing shortness of breath on a regular basis, even if I was simply walking from the kitchen to the living room. I thought it was just a sign of aging, since I was 67 years old at the time. However, it progressed to the point that one day I suddenly…

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If I Had Waited Any Longer, I Could Have Died: Allyson’s Story

I am 18 years old and during November 2020 I contracted COVID-19. A few months later, I started having pain in my leg and I found it difficult to breathe. My mom took me to the doctor and they told me it was just anxiety. But three days later, I convinced my mom that something…

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An Overdue Diagnosis: Alysa’s Story

In February 2021, at 28 years old, I was diagnosed with a 5.5- inch blood clot in my left vena cava. I was admitted to the hospital and the images revealed that the clot had been present and developing for more than a year and a half! I also underwent knee surgery one month prior…

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