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Patient Stories

Know Your Family Health History: Kelly’s Story

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood, until I finally gained some life and crawled to call 9-1-1. When the medics arrived, I was barely able to breathe and went into cardiac arrest three times.…

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Knowledge is Power: Sheila’s Story

On September 5, 2021 I woke up in the middle of the night with a cramping pain in my right leg, which didn’t seem like anything serious at the time. I woke up the next morning and carried out my usual routine, but the pain became unbearable so I decided to see a doctor. The…

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My Commitment to CTEPH Awareness: Harry’s Story

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …

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If You Believe You Can, You Will: John’s Story

In the fall of 2020, a near-fatal bilateral pulmonary embolism came from nowhere, cause unknown. As a 14-time marathoner and in the best shape of my life, this came as a complete shock. Following my diagnosis, I was put on blood thinners. As an athlete, adjusting to the blood thinners was a challenge. I was…

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Blood Clots Know No Age: Sowebah’s Story

Six months ago, at 31 years old, I suffered a deep vein thrombosis (DVT). Blood clots know no age. On March 3, 2021 I woke up and had a pain in my left leg and knew something was wrong. I visited a doctor who sent me for an ultrasound, which revealed a massive DVT spanning…

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Know Your Blood Clot Risk Factors: Nicole’s Story

In May of 2021, I dislocated my ankle. I was also on hormonal birth control. After the ankle injury, I was told to go home and rest, and not to bear weight on my ankle for 4-6 weeks. After about a week and a half, I had intense pain and cramping in the calf of…

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I Felt Like No One Was Listening to Me: Natalie’s Story

A few days after my fourth daughter was born, I went to the emergency room for terrible leg pain. They did an ultrasound and assured me I did not have any blood clots. I went back again for a second time because I was certain I had a blood clot. Again, they sent me home…

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Every Day is A Chance to Raise Awareness: Kris’ Story

After twisting my ankle a few weeks prior, I had a dull charley horse ache in my calf. Nothing worked to relieve it, but it wasn’t too bad, and it was easy to ignore most of the time. I started to notice when climbing up my stairs at home I would get a little out…

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The Emotional Toll Has Been Challenging: Jenna’s Story

In September 2020, at the age of 24 and in good health, one week away from graduating with my master’s degree, I nearly lost my life. I woke up one day with a headache slightly worse than normal. Over a week, things got worse until I was in more pain than I had ever experienced…

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The Day that Changed My Life Forever: Kelly’s Story

I was diagnosed with bilateral pulmonary emboli, or blood clots in my lungs, on July 20, 2020, at the age of 28. This clotting was provoked by estrogen-based birth control combined with immobility due to a recent wisdom teeth extraction. This was a day I will never forget and a day that changed my life…

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