Patient Stories
I Live Every Day Freely, With Love and Intent: Egypt’s Story
After walking up five flights of stairs to a friend’s Manhattan apartment, I rested at the top of the staircase. It took me almost 15 minutes to gain control of my breathing. I chalked it up to the extra pounds I had gained. A few days later, my bottom lower right extremity began to swell…
My Only Risk Factor was an Estrogen-Based Birth Control Patch: Stacy’s Story
On May 22, 2022, I woke up and had breakfast with my family. As I was getting ready for my day, I felt dizzy and weak, then I fainted. When I woke up, I projectile vomited. I eventually made it to the shower. When I got out, I was still feeling weak and dizzy. The…
I Heard the Doctor Say my Outlook Wasn’t Great: Morgan’s Story
In March 2019, I was recovering from a broken ankle when I began experiencing odd, unfamiliar symptoms, like shortness of breath and back pain. I thought it was anxiety. My husband picked me up from work one day, and the second I got in his car, I couldn’t breathe, then I passed out. When he…
Please Don’t Take ‘You’re Fine’ as an Answer: Shola’s Story
During my first pregnancy, I had been feeling faint. Soon after, I started getting headaches with flashing black dots in my eyes. My midwife had told me that my blood pressure was higher than it should be, and that if I got any painful headaches and started seeing black dots, I should go straight to…
The Hematologist Told Me to Buy a Lottery Ticket For How Lucky I’d Been: McKenna’s Story
In the summer of 2021, I started to experience extreme back pain. At times, I was unable to sit down or move at all. Being an active 20-year-old who grew up playing sports, I attributed my pain to a tweak that I just needed to stretch out. But the pain continued getting worse, and my…
My Only Risk Factor Was Estrogen: Ann’s Story
I started having intermittent chest pain in March 2021. I thought it was a sports injury and went to see my primary care provider (PCP). By May of that year, the pain was constant, so my PCP scheduled a CT scan. I arrived at the imaging center and they had not received my order.…
Be Cautious and Know It Can Happen to Anyone: Erin’s Story
I have been an athlete my whole life. I am a Division 1 swimmer and work out every day. One day, I started feeling a sharp pain in my lower back after lifting weights and thought I overdid it or used incorrect form. It began to progress and I started getting extreme pain that radiated…
Life is So Very Precious: Daisy’s Story
I’ve experienced deep vein thrombosis twice in my life so far. In 2010, when I was six weeks postpartum, I had cramps in my calf that lasted for three days, but I had no discoloration or swelling. I called my doctor and they had me come in “just in case.” An ultrasound of my right…
I Was Told it Was Just Inflammation: Alphonso’s Story
I am a 48-year-old male and in March 2023, I was diagnosed with a blood clot spanning from my lower right calf up to the pelvic area. This was the result of a meniscus procedure I had done on my right knee approximately four weeks earlier. The first symptoms I experienced were tightness, swelling,…
We Lost Our Son at the Age of 20: Adam’s Story
As told by his mother, Jenifer. On Dec. 3, 2020, I took my 18-year-old son, Adam, to the ER. He had severe back and leg pain, and his leg was swollen and purple. I thought that it was a pinched nerve or maybe a kidney infection. Doctors discovered a massive clot in his left…