Patient Stories
My Road to Recovery is a Lifetime Journey: Vanessa’s Story
In September 2022, a couple of weeks after undergoing an emergency appendectomy, I was woken up by an intense pain in my knee. It lasted a few minutes and then I went back to sleep. A few days later, the pain came back and spread to my thigh, and I could not put weight on…
Stay Resilient, Listen to Your Body and Advocate for Yourself: Lauren’s Story
In the fall of 2023, I was a healthy 21-year-old college senior busy with graduate school applications and interviews. I was working out multiple days a week and going to class, trying to enjoy my last year of college. One night, I went bowling for the first time in a while and woke up the…
Use This As Your Reason to Live: Tilly’s Story
It began with excruciating back pain and shooting pains up my left leg. I felt unable to walk. The week that I noticed my first symptoms, I was back and forth to urgent care and the doctors. They kept saying the same thing, “You have nerve damage” (sciatica). They gave me painkillers and told me…
We Must Be Advocates for Ourselves and Our Family Members: Marcus’ and Shannon’s Story
As told by his daughter, Shannon In April 2024, my father, a retired police lieutenant, was diagnosed with duodenal cancer. He was unable to have the tumor removed and was undergoing chemotherapy. In late August 2024, he started complaining about being dizzy and lightheaded. He went to his primary care provider who told him that…
I Was Blown Away By the PTSD I Felt: Donna’s Story
On Christmas Eve 2023, I slipped on ice and broke my kneecap. I spent eight weeks in a splint and kept my leg elevated. Two weeks later, I experienced shortness of breath and chest pain suddenly. I went to the ER and was diagnosed with a submassive bilateral PE with right heart strain. I spent…
I Developed PTSD From This Experience: Autumn’s Story
In September 2024, I went on FMLA and short-term disability due to severe pain in my leg that was assumed to be a hamstring and calf cramp issue. Less than two months later, on Nov. 14, 2024, I had the biggest scare of my life. I woke up that morning and went to let my…
We Need More Voices, But Too Many of Us Aren’t Lucky Enough to Share Our Stories: Kyra’s Story
When I gave birth to my son, I was so excited to be a parent. But I began having headaches that were not normal. In the hospital, I was given medication to clot my blood because of slightly more than average blood loss. I was also given extra blood pressure checks because my blood pressure…
If Something Feels Off, Get It Checked Out: Emily’s Story
When I went in for hip surgery to repair my labrum — a ring of cartilage in the hip that stabilizes and cushions the hip joint — I was excited. After two years of limited mobility, I couldn’t wait to get back to the active lifestyle I loved. I’d likely injured myself training for triathlons,…
Never Let Embarrassment Stop You From Getting Help: Briar’s Story
I am a healthy 23-year-old woman and had never experienced any real health concerns. I walk the same route every morning to work, but on this particular morning, I was out of breath almost instantly. When I sat at my desk, I was still unable to catch my breath. It felt like the air was…
I Dealt With Pain and Swelling For Five Years: LaVon’s Story
After leaving the gym in 2017, I experienced the worst pain imaginable in my right leg without having an injury. I thought maybe the pain would leave after icing and elevating it. But, as the day went on, the pain and swelling worsened to the point I couldn’t stand or walk on it. I went…