Patient Stories
My Experiences with DVTs and PEs have Changed my Life: Hannah’s Story
On September 8, 2021, when I was 24, I had an emergency appendectomy. Four days later, I went into the ER for extreme calf pain and tightness in my chest, as it felt like I couldn’t get a full breath. I was diagnosed with DVTs in my left leg and bilateral lower lobe pulmonary emboli.…
Life Goes On After Blood Clots: Krissy’s Story
The first pulmonary embolism I had was in 2015, six weeks after having foot surgery. I was terrified as I couldn’t breathe. I was put on a blood thinner and hospitalized for three days. My second pulmonary embolism was at the end of 2022. I had chest pain, so I went to the ER. They…
The ER Doctor Did Not Want To Do a CT Scan: Meghan’s Story
About two weeks after a surgical procedure, I began having pain on my left side near my rib cage and towards my back. I assumed I had pulled a muscle due to overcompensating with my upper body post-surgery. The pain became relentless and I began having shortness of breath that I assumed was musculoskeletal pain…
My APS Diagnosis Got Lost: Dione’s Story
In 1994, I had my son prematurely at 24 weeks. They did a bunch of testing and found out that I had antiphospholipid syndrome (APS). I had another preterm baby at 25 weeks three years later. I was followed by a high-risk OB/GYN at the time but no other preventative measures were done while pregnant.…
Two Major Surgeries When I Had Clots: Mary’s Story
In January 2024, I started having difficulty walking up a long hill to get to my car after work. It got to the point where it scared me how hard I was breathing by the time I got to the top. In February, I had a pre-surgical exam for a shoulder replacement scheduled in March.…
I Credit My PT and Orthopedic Clinic for Their Action: Molly’s Story
I hurt my knee, and after 10 months of physical therapy, I found myself having a meniscus repair surgery. Post-surgery, I was in physical therapy again. About six weeks after surgery, I noticed more swelling, which I attributed to being at work for some very long days and not having time to walk around as…
I Can Be a Survivor and Have a Life After This: Paula’s Story
My experience was in the summer of 2021. I woke one Sunday morning feeling shortness of breath, and I continued my day with increasing difficulty breathing. On Monday, I went to an urgent care clinic. They did not do a CT scan, they assumed because I was overweight and out of breath that it was…
Surgery and Travel Resulted in Three DVTs: Chris’ Story
In 2006, I completed my fall lacrosse season in my senior year at Eastern University. I was experiencing a lot of knee pain and after an examination, I was diagnosed with a torn meniscus. I needed knee surgery to clean out the knee and fix the tear. The day after my surgery, I noticed that…
My Only Risk Factors Were Birth Control and a Long Car Ride: Hillary’s Story
My husband and took a trip to Destin, Florida for a long weekend after finding out my breast biopsy surgery was benign. We drove 14 hours in one day from Michigan and returned a few days later, only stopping twice for gas. I returned to work and walked to my office up two flights of…
Doctors Will Gaslight You Into Believing You’re Crazy: Kourtney’s Story
I was diagnosed with a DVT and bilateral pulmonary embolism on April 10, 2024. I underwent a biopsy for a uterine cyst in November 2023 and subsequently had my menstrual period for almost 30 days. My gynecologist prescribed me birth control to stop my period. From mid-January until April, I was taking four birth control…
