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Patient Stories

I Decided To Trust My Instincts: Bethan’s Story

I am a keen runner and I live in a national park in Wales, so I regularly run by myself in the hills. This is my happy place. Last year I ran for Wales for the first time, representing my country doing what I love, which was an incredible feeling. In early January of this…

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I Was Diagnosed With Unexplained Chest Pain: Kyndal’s Story

At the end of summer in 2018, I was days away from the beginning of my college soccer career at Furman University. Every day that summer, I was preparing my body physically for the demands of being a college athlete. During my last workout before I left for preseason, I began experiencing chest pain, shortness…

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My Children Will Have Education About Blood Clots: Katelyn’s Story

It was the last day of our honeymoon. We were packing when I had a sudden onset of nausea, and I was also hot, dizzy, and out of breath. It felt like I was running a marathon every few feet I walked. But I was determined to enjoy our last day, so I took a…

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I Never Thought It Would Happen to Me: Addie’s Story

I am a 24-year-old  old active and healthy woman. No real elevated risk factors for clots. I never thought it would be me. I had underwent an ablation, minimally invasive procedure to treat supraventricular tachycardia (SVT), which is an abnormally fast heart rate originating in the upper chambers of the heart (atria). They said that my SVT…

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I’m A Three-Time Pulmonary Embolism Survivor: Mallory’s Story

I am a three-time pulmonary embolism survivor! My first PE was in 2003 after childbirth complications (including a collapsed lung), which caused me to be hospitalized for one month. After I was released from the hospital, I returned one week later with shortness of breath while my lungs were still healing and stayed in the hospital…

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It Was The Beginning of My Transformation: Nicki’s Story

I just had my one-year clotiversary! Last Presidents’ Day, on February 19, 2024, I faced a life-altering struggle. After days of coughing up blood and an urgent care provider’s dismissive reassurance that I simply had a bad case of bronchitis, I finally found help in the emergency room. Doctors diagnosed me with an unprovoked pulmonary…

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I’m Thankful for my General Practitioner: Jonathan’s Story

In January 2025, I collapsed at A&E (the emergency department in the UK) with chest pain and a racing heart (tachycardia.) I have a history of arrhythmias and spent three days in the hospital for tests, and was put on medication for arrhythmia before being discharged. I was due to have a follow-up and was…

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I Don’t Believe They Ever Knew in the ER That He Had a Blood Clot: Mike’s Story

As told by his wife Mendy My husband Mike was a healthy, active 50-year-old who suddenly passed on December 19, 2024, due to an unprovoked pulmonary embolism. His autopsy listed a saddle and bilateral main and right and left pulmonary thromboembolism, with complete 100% occlusions within the main right and left pulmonary arteries.  The night…

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I Made a Goodbye Video For My Daughter: Ashley’s Story

On October 6, 2024, at 36 weeks pregnant, I found myself in the emergency department of the hospital where I began and ended my bedside nursing career. My shortness of breath and elevated heart rate, which could have easily been attributed to pregnancy itself, were soon discovered to be due to a submassive saddle pulmonary…

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My Symptoms Were Dismissed: Sophee’s Story

In April 2020, at the peak of COVID, I started experiencing pain in my lower back. During a walk with friends, a sharp pain would shoot down my right leg with every step. I tried to ignore the pain and continued the walk. Later that evening, my leg started to swell, and the pain got…

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