Patient Stories
My History is a Sequence of Crises: Whitney’s Story
I’m 27, and my story isn’t about being young; it’s about blood that doesn’t flow. My history is a sequence of crises. Two weeks postpartum, IVF hormones and an emergency C-section created the perfect storm. I was struck by shortness of breath, chest pain, and neck pain. Rushed to the hospital, they found a pulmonary…
Blood Clots Symptoms Mimic Other Things, So Be Careful: Hope’s Story
This May, I tore my calf muscle playing soccer. It was the same injury I had only three months earlier, so I thought I knew what to expect. Three days later, I had a massage and then left for Cuba that evening on a three-hour flight. My calf was sore and I had bought a…
My Goal is to Raise Awareness and Promote Healthy Blood Flow Habits: Megan’s Story
In June 2024, shortly after turning 30, I was diagnosed with an unprovoked blood clot in my lower left leg (deep vein thrombosis, or DVT). The diagnosis and the sudden need to start blood thinners felt like a death sentence. I was terrified and didn’t know where to turn. Once the clot was discovered, I…
Never Stop Advocating For Yourself: Nicole’s Story
On December 11, 2024, I went to the emergency room because my entire right arm was swollen. My father told me not to go since I wasn’t in pain and already had a doctor’s appointment scheduled for the next day, but something told me to get it checked out. I truly believed nothing serious was…
I Was Repeatedly Misdiagnosed and my Symptoms Were Dismissed: Liz’s Story
After a dilation and curettage (D&C), my doctor tore my cervix. I was given medication to stop the bleeding, but I passed out in the hospital from blood loss five days later. My doctor gave me tranexamic acid (TXA) to control the hemorrhaging. Later that day, I started feeling a burning sensation in my chest.…
Always Pay Attention to Changes in Your Body: Kristian’s Story
In May of this year, I took a short flight, only about two and a half hours one way, and soon after, I noticed a cramping sensation in my right calf. I assumed it was just soreness or dehydration, so I ignored it for a couple of days. When the pain didn’t go away, I…
The Fear of Another PE Still Lives in my Body: Caitlyn’s Story
It was a couple of days after traveling when I first noticed something wasn’t right. I had switched birth control pills within the last several months. At my first conference talk after COVID, I realized mid-presentation that I couldn’t quite get through full sentences without pausing for breath. I told myself it was just nerves.…
Advocate For Yourself: Fallan’s Story
In February 2025, while at work, I started developing a terrible headache, fever, chills, and body aches. I assumed I was coming down with the flu. I spent a day in bed watching TV and resting. Two days later, the flu-like symptoms subsided, but I developed stiffness and pain in my neck. Within 24 hours,…
Blood Clots Can Happen to Anyone: Brenna’s Story
I’m 30 years old and have a complicated medical history. As a teenager, I was diagnosed with fibromyalgia and Ehlers-Danlos syndrome, and today I manage more than 20 different health conditions. On April 20, 2021, I felt severe pain in my left leg. It was swollen, purple, and hot to the touch. I called my…
I’m Grateful to Have Found a Community That Understands: Perry’s Story
I’m a 63-year-old man and have experienced two instances of blood clots (deep vein thrombosis, or DVTs) in my left calf. The first happened in 2018, shortly after being diagnosed with stage one lung cancer. I had surgery to remove the lower part of my left lung and followed regular scans for five years before…
