Filter Patient Stories by tags…

Patient Stories

Take Control and Take Steps to Prevent Blood Clots: Ashley’s Story

My name is Ashley, and I was diagnosed with factor V Leiden, protein S deficiency, and protein C deficiency in March 2017. I was a waitress at the time, and I had just torn my shoulder due to a weight lifting accident. So, I started running outside a lot to stay active before I had…

Read the full story

My Life with May-Thurner Syndrome: Kelly’s Story

I can still remember sitting alone in the emergency room sending funny selfies to my Mom. Why not? I lived in Pennsylvania and she was in North Dakota, and, of course, she was worried. I, on the other hand, was annoyed. Everything started with terrible lower left back pain that eventually moved to my left…

Read the full story

If Something Doesn’t Feel Right, Get it Checked: Tanya’s Story

In 2005, I had severe uterine bleeding which lasted for 10 months. As a result, I was forced to have an emergency hysterectomy. In an effort to try to stop the bleeding, I was encouraged to take high doses of estrogen-based birth control pills. Two days before my surgery, I was also given two shots of estrogen-based…

Read the full story

Staying Positive Through My Experience with CVST: Maddie’s Story

Maddie first learned about blood clots from reading the warning label on her estrogen-based birth control prescription, but she never thought one would happen to her, especially in her brain. Read about her CVST diagnosis and recovery, and find out how she chooses to stay positive.

Read the full story

The Day that Changed My Life: Kimberly’s Story

Kimberly experienced ongoing chest pain, a racing heart, and shortness of breath, which she thought were most certainly due to a heart attack. She sought help from the emergency room on multiple occasions and was told she was experiencing anxiety, but she knew something was wrong. It wasn’t until she went to a different hospital that doctors …

Read the full story

Gaining Understanding After My Blood Clot: Sarah’s Story

Sarah was a full-time college student when doctors discovered a blood clot in her abdomen that blocked almost all of her collateral veins and produced swelling and pain in her leg. They thought the clot was covering her inferior vena cava, but after she had surgery to remove the clot, they realized her inferior vena cava was completely …

Read the full story

My Strained Muscle was a Blood Clot: Cristal’s Story

I’m in my mid-twenties and very active. When I experienced calf pain for about two weeks, I attributed it to a strain from uphill running and other cardio and weightlifting workouts. Towards the end of two weeks, I couldn’t ignore the pain. I decided to pop into a nearby physical therapist’s office. I explained my…

Read the full story

Finally Myself Again: Katie’s Story

I ran my first marathon in 2017, started graduate school for a Masters in Accounting, and accepted a job with a public accounting firm post-graduation. I have always led an active lifestyle throughout high school and into college, which is why it is still difficult for me to wrap my head around the fact that…

Read the full story

The Right Treatment Changed My Life: Jan’s Story

In June 2011, 16 weeks after giving birth to my first child, I started having symptoms of back pain. As a  23-year-old new mother, I diagnosed myself with all sorts of things. I decided that the pain I was experiencing must be my kidneys reacting to alcohol after such a long time without any, and…

Read the full story

I Had Three PEs: Kirsys’ Story

For all of my life, I have struggled with my weight. When I was 23 and 346 pounds, I decided to get gastric bypass surgery. That is when my nightmare started.  After the surgery, I followed my doctor’s orders to walk as much as possible. However, I started experiencing chest pain about a week later…

Read the full story