Patient Stories
The PCP Who Dismissed My Concerns Was Dismissed By Me: Kay’s Story
After having provoked blood clots from hip surgery (the symptoms I experienced included leg pain, shortness of breath, and chest pain) I asked my primary care physician if she would order bloodwork to determine if I have a clotting disorder. I was detailing my family members with similar issues: my mother had an unprovoked pulmonary…
I Am My Best Advocate: Jessica’s Story
I am one of the lucky ones. At 46, I was active and healthy. On April 27, 2020, during a round of backyard badminton with my kids, I felt woozy and dizzy and needed to lie down. I couldn’t move or speak. I had a stroke! More specifically, a posterior cerebral artery (PCA) stroke. I…
I Was Overcome With Intense, Debilitating Chest Pain: Nina’s Story
I had been feeling unwell for several weeks. I had swelling and pain in my legs and other random symptoms. I had bought almost every leg cream in an attempt to get some sleep at night. All that was pushed aside when my daughter went into labor unexpectedly just a few days before my husband…
I Almost Left the ER: Lucy’s Story
In October 2020 at age 28, I woke up at 5 a.m. with back pain. It felt like I pulled a muscle. Throughout the day, the pain got worse. It hurt to sit or lie down. By the next morning, I was vomiting from pain and decided to drive myself to the emergency room. The…
I Had to Figure Everything Out on My Own: Sue’s Story
In the spring of 2018, I began having severe shortness of breath. I’m an asthmatic and was using a rescue inhaler constantly, but it didn’t help much. After about six weeks of complaining to my healthcare providers, they did a chest x-ray that was normal. Two weeks later, I was back in the office with…
I Have Alarms Reminding Me to Take My Medication Twice Daily: Sherri’s Story
I am a wife and mother of four girls. I began having complications with my fallopian tubes and painful menstrual cycles. I had both fallopian tubes removed, one in 2020 and the other after I had baby #4 in 2021. I ended up having a hysterectomy in February 2023. About a week after having the…
My Symptoms Felt Like Indigestion: Amy’s Story
In March 2016, I had only been on estrogen-based birth control for a few months and decided to take a four-hour road trip with some friends. A few days after, I started to feel like I had heartburn. At first, my symptoms felt a lot like indigestion — pressure in the chest, but not painful.…
I Spent 18 Months on Supplemental Oxygen: Maresa’s Story
I had been having what I considered typical cold symptoms for about a month. Ongoing negative COVID tests gave little clarity. The doctors initially diagnosed me with a sinus infection then and pneumonia when the symptoms didn’t subside. I woke up Valentines Day 2022 with total numbness on my right side. I could not make…
The Doctor Wanted to Send Me Home: Catalina’s Story
My heart was beating unusually and I felt tired; it was a long day. After family holidays and an accident on the road, we were trapped for several hours in the car. When I arrived at my destination, my heart still racing. I felt it in my neck. My heart rate was between 160-180. As…
Being Diagnosed with a PE was a Traumatic Experience: Lauren’s Story
In early April 2023, I underwent a complete hysterectomy. My recovery was complicated by uncontrolled pain and urinary retention, which required a Foley catheter for a week. I then started experiencing a UTI, which required hospitalization. I was finally improving by the end of April, but on May 5, 2023, I suddenly started to experience…