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Birth control

I Took Estrogen-Based Birth Control For More Than 20 Years: Megan’s Story

I am a healthy 44-year-old mom, wife, and professional who has never had any health issues. But 2024 was an extremely busy year, and I was having a lot of stress and anxiety. In October, I started experiencing some minor pain in my shoulder. Within a few days, the pain had moved into my side…

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Another Minute of Waiting Could Have Killed Me: Paige’s Story

A week before everything took a drastic turn, I had fallen and broken my foot. I was placed in a boot and told to rest. A few days later, I noticed the back of my knee hurting. Not just a regular ache, but one that felt like a cramp and the pain meds didn’t touch…

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A Wakeup Call at 26: Meghan’s Story

One morning I was feeling lightheaded, so I checked my running watch and saw my heart rate was in the low 40s. I assumed I’d just stood up too quickly. As the day went on, I felt some chest pressure, which I chalked up to anxiety, something I often experience with POTS. But the pressure…

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Today, I’m Blessed to Have My Health: Kimberly’s Story

I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email group) to learn more. Fifteen years later, with occasional SVTs and genetic testing now available, I was diagnosed with one factor V Leiden gene (heterozygous).…

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I’m Grateful for Every Healthy Day I Have: Julie’s Story

In December 2023, I finally got Covid. Not once, but twice with a rebound version. I was so sick I couldn’t move on the second round. For months, I worked with my GP to modify and add medications, trying to get my breathing better. Nothing worked, and I barely left the house for months. It…

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I’m More Mindful: Lainey’s Story

I was being evaluated for chest pain by a pulmonologist who was treating me with opioids. The night before my diagnosis, I was participating in a group yoga class where I won a T-shirt for sweating the most. I had pools of sweat under me like it was a Bikram class, but the A/C was…

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I Ignored My Body’s Signals: Kim’s Story

In 2015, six weeks after starting a synthetic, estrogen-based birth control pill for perimenopausal symptoms, and one month into an overseas trip, I experienced the first symptoms of what I now know to be deep vein thrombosis and multiple pulmonary emboli. Sadly, my years of experience as a critical care nurse did not help me…

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Having a Blood Clot Will Not Slow Me Down: Barbara’s Story

In August 2023, I had my second bunionectomy. The first was in 2015 with no complications. This time would prove differently. Preparing for surgery, I was advised by the surgical team to curtail my activities in the following days. After surgery, I adhered to the instructions. I elevated my leg often and limited going up…

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I Received the Diagnosis of Chronic Thromboembolic Disease (CTED): Christine’s Story

On June 16, 2022, I woke up early to get ready for a trip to a large car show when I noticed a sharp pain in my shoulder. Throughout the three-hour drive, I started to experience pain in my back when I breathed which lasted throughout the day. I did not experience symptoms the following…

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Healing Physically Was the Easy Part: Chloe’s Story

In 2016, when I was a sophomore in high school, I started having trouble breathing. My primary care doctor couldn’t figure out what was going on. I kept getting worse until my mom finally requested a specialist. They saw that my pulmonary pressures were through the roof and they wouldn’t let me go home. After…

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