Filter Patient Stories by tags…

Birth control

I Ignored My Body’s Signals: Kim’s Story

In 2015, six weeks after starting a synthetic, estrogen-based birth control pill for perimenopausal symptoms, and one month into an overseas trip, I experienced the first symptoms of what I now know to be deep vein thrombosis and multiple pulmonary emboli. Sadly, my years of experience as a critical care nurse did not help me…

Read the full story

Having a Blood Clot Will Not Slow Me Down: Barbara’s Story

In August 2023, I had my second bunionectomy. The first was in 2015 with no complications. This time would prove differently. Preparing for surgery, I was advised by the surgical team to curtail my activities in the following days. After surgery, I adhered to the instructions. I elevated my leg often and limited going up…

Read the full story

I Received the Diagnosis of Chronic Thromboembolic Disease (CTED): Christine’s Story

On June 16, 2022, I woke up early to get ready for a trip to a large car show when I noticed a sharp pain in my shoulder. Throughout the three-hour drive, I started to experience pain in my back when I breathed which lasted throughout the day. I did not experience symptoms the following…

Read the full story

Healing Physically Was the Easy Part: Chloe’s Story

In 2016, when I was a sophomore in high school, I started having trouble breathing. My primary care doctor couldn’t figure out what was going on. I kept getting worse until my mom finally requested a specialist. They saw that my pulmonary pressures were through the roof and they wouldn’t let me go home. After…

Read the full story

This is the Scariest Thing I’ve Ever Been Through: Rakeisha’s Story

My gynecologist put me on a contraceptive ring and I wasn’t even on it a full 30 days before it almost killed me. On May 17, 2024, I woke up, couldn’t breathe, and could barely take two steps without almost passing out! I went to the ER around 9 a.m., I explained my symptoms, and…

Read the full story

This Diagnosis Was Shocking: Lacey’s Story

At the end of June, I began experiencing symptoms that I initially attributed to a chest cold. Since I could still carry out my regular activities, like exercising and working, I didn’t pay much attention. However, after about a week, my condition worsened, leading to severe pain when I inhaled and difficulty breathing. The persistent…

Read the full story

My Experiences with DVTs and PEs have Changed my Life: Hannah’s Story

On September 8, 2021, when I was 24, I had an emergency appendectomy. Four days later, I went into the ER for extreme calf pain and tightness in my chest, as it felt like I couldn’t get a full breath. I was diagnosed with DVTs in my left leg and bilateral lower lobe pulmonary emboli.…

Read the full story

My Only Risk Factors Were Birth Control and a Long Car Ride: Hillary’s Story

My husband and took a trip to Destin, Florida for a long weekend after finding out my breast biopsy surgery was benign. We drove 14 hours in one day from Michigan and returned a few days later, only stopping twice for gas. I returned to work and walked to my office up two flights of…

Read the full story

Doctors Will Gaslight You Into Believing You’re Crazy: Kourtney’s Story

I was diagnosed with a DVT and bilateral pulmonary embolism on April 10, 2024. I underwent a biopsy for a uterine cyst in November 2023 and subsequently had my menstrual period for almost 30 days. My gynecologist prescribed me birth control to stop my period. From mid-January until April, I was taking four birth control…

Read the full story

I Convinced Myself It Would Never Happen to Me: Kristin’s Story

When I was just a few months shy of turning 24, I traveled to Mexico, which included a four-hour drive to the airport and four-hour flight. Once I returned, I got sick with a gastrointestinal bug and was off work for three days. The night before I returned to work, I had some chest pain…

Read the full story