Child
Healing Physically Was the Easy Part: Chloe’s Story
In 2016, when I was a sophomore in high school, I started having trouble breathing. My primary care doctor couldn’t figure out what was going on. I kept getting worse until my mom finally requested a specialist. They saw that my pulmonary pressures were through the roof and they wouldn’t let me go home. After…
This Has Completely Changed Everything: Andrea and Andre’s Story
Wednesday, January 18, 2023, will be a day I will never forget. It started as an ordinary day at home with my two children, Amelia, and Andre. My son Andre, who had just turned 3 a month before, had been sick for about a week. I had already taken him to the pediatrician just three…
I’m Proud of How Far I’ve Come: Juliana’s Story
Less than two days after giving birth to her first baby, my aunt died of blood clots in her lungs and heart. I was 13 at the time and the news shocked the whole family. Two weeks after her funeral, I had some strange leg pain. I thought I had pulled a muscle or injured…
My Teen Suffered a PE After Surgery: An Anonymous Parent
My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…
VTOS is a Medical Emergency: Elise’s Story
On October 24, 2023, my 13-year-old daughter Elise’s arm began to swell and change color during swim practice. Elise has been a competitive swimmer since she was five years old and being at practice was a routine part of her day for many, many years. Her coaches did not know what was wrong with her…
Blood Clots Are Often Misdiagnosed as Pneumonia: Taylor’s Story
My 14-year-old son died. I took him to the doctors twice the same week of his death. They diagnosed him with light pneumonia in his left lung. He died less than a week later and when the autopsy came back, it showed he had blood clot in his left lung and no pneumonia. I’ve done…
Don’t Ignore Symptoms of a Blood Clot: Marvin’s Story
In 2017, I was having redness, warmth, pain, and heaviness in my right leg. I was 17 at the time and I had just begun my senior year in high school a few weeks before. I was in school when I first saw that my leg was red, and I made a mistake by not…
My Newborn Son Developed a DVT Before Birth: Sydney and William’s Story
My son William was born August 21, 2020 and was healthy. But two days later, we noticed that his right leg was swelling up and turning purple. He was transferred to our local children’s hospital and he was admitted to the NICU on August 24, 2020. We were in the NICU until September 11. He…
I Had a Blood Clot at 14: McKenna’s Story
When I was 14, I flew to my dad’s house in California to celebrate Christmas with him and my siblings. By the middle of the week, my left thigh was swollen, red, and hot and I couldn’t walk on it. I tried many things to get myself moving, but it hurt too much. When I…
We Lived in the Hospital for Six Months: Luca and Mousumi’s Story
My son Luca is 16 years old and has a rare clotting disorder called protein C deficiency. Doctors initially thought it was a bleeding disorder, but it turned out to be a clotting problem. He forms micro-clots that use up the clotting factors, which causes internal bleeding. It started just before Luca turned two years…
