CTED
I Refuse to Let CTED Control My Life: Lizzie’s Story
I suffered a massive saddle pulmonary embolism as well as multiple smaller PEs, some of which are now chronic, in October 2022. My event was provoked by an unsuccessful vascular ablation that left my great saphenous vein partially open and Covid 19. Two years later, I still experience intermittent chest tightness and fatigue. After an…
I Received the Diagnosis of Chronic Thromboembolic Disease (CTED): Christine’s Story
On June 16, 2022, I woke up early to get ready for a trip to a large car show when I noticed a sharp pain in my shoulder. Throughout the three-hour drive, I started to experience pain in my back when I breathed which lasted throughout the day. I did not experience symptoms the following…
All I Wanted to Do Was Delivery My Baby Safely: Faye’s Story
I was 31 weeks pregnant and was feeling very breathless. I had a routine appointment at the hospital and I was going to cancel as I felt so unwell. They immediately looked at me and things started to happen very quickly. I had a massive PE with right heart strain. They said if I hadn’t…
My Current Diagnosis is Chronic Thromboembolic Disease: Ann’s Story
On Day 10 of a mild case of Covid and after running five miles that morning, I developed pain under my collarbone right before bedtime. I thought it might be a coronary vasospasm, which I get, so I took nitroglycerin. It didn’t help, so I decided to measure my oxygen, which was in the mid-80s.…
