CTEPH

In 2021, I was experiencing shortness of breath, blue lips, constant fatigue, and brain fog. I could barely walk up one flight of stairs to my apartment and would collapse at the door many times. My doctor kept saying it was bronchitis and would regularly test for Covid, which always came back negative. I ultimately terminated…

In 2016, when I was a sophomore in high school, I started having trouble breathing. My primary care doctor couldn’t figure out what was going on. I kept getting worse until my mom finally requested a specialist. They saw that my pulmonary pressures were through the roof and they wouldn’t let me go home. After…

In January 2020, seven days after getting married, I was diagnosed with Hodgkin’s Lymphoma at 29. After six brutal months of chemotherapy, my cancer was in remission, and I was ready to return to “normal” life. Unfortunately, my health continued to worsen.   In December 2021, I had pain, swelling, and bulging veins in my right…

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …