Filter Patient Stories by tags…

CTEPH

Healing Physically Was the Easy Part: Chloe’s Story

In 2016, when I was a sophomore in high school, I started having trouble breathing. My primary care doctor couldn’t figure out what was going on. I kept getting worse until my mom finally requested a specialist. They saw that my pulmonary pressures were through the roof and they wouldn’t let me go home. After…

Read the full story

I’ve Reset My Priorities: Jessica’s Story

In January 2020, seven days after getting married, I was diagnosed with Hodgkin’s Lymphoma at 29. After six brutal months of chemotherapy, my cancer was in remission, and I was ready to return to “normal” life. Unfortunately, my health continued to worsen.   In December 2021, I had pain, swelling, and bulging veins in my right…

Read the full story

My Commitment to CTEPH Awareness: Harry’s Story

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …

Read the full story