DVT
My Clot Started 10 Years Before It Was Found: Jana’s Story
In December 2022, I had the worst pain in my life in my left side of my buttocks after working out. Being a physical therapist and a retired high-level figure skater, I assumed I had strained a muscle until I was unable to walk or bear weight on my left leg. After three ER visits…
My Experiences with DVTs and PEs have Changed my Life: Hannah’s Story
On September 8, 2021, when I was 24, I had an emergency appendectomy. Four days later, I went into the ER for extreme calf pain and tightness in my chest, as it felt like I couldn’t get a full breath. I was diagnosed with DVTs in my left leg and bilateral lower lobe pulmonary emboli.…
My APS Diagnosis Got Lost: Dione’s Story
In 1994, I had my son prematurely at 24 weeks. They did a bunch of testing and found out that I had antiphospholipid syndrome (APS). I had another preterm baby at 25 weeks three years later. I was followed by a high-risk OB/GYN at the time but no other preventative measures were done while pregnant.…
Two Major Surgeries When I Had Clots: Mary’s Story
In January 2024, I started having difficulty walking up a long hill to get to my car after work. It got to the point where it scared me how hard I was breathing by the time I got to the top. In February, I had a pre-surgical exam for a shoulder replacement scheduled in March.…
I Credit My PT and Orthopedic Clinic for Their Action: Molly’s Story
I hurt my knee, and after 10 months of physical therapy, I found myself having a meniscus repair surgery. Post-surgery, I was in physical therapy again. About six weeks after surgery, I noticed more swelling, which I attributed to being at work for some very long days and not having time to walk around as…
Surgery and Travel Resulted in Three DVTs: Chris’ Story
In 2006, I completed my fall lacrosse season in my senior year at Eastern University. I was experiencing a lot of knee pain and after an examination, I was diagnosed with a torn meniscus. I needed knee surgery to clean out the knee and fix the tear. The day after my surgery, I noticed that…
Doctors Will Gaslight You Into Believing You’re Crazy: Kourtney’s Story
I was diagnosed with a DVT and bilateral pulmonary embolism on April 10, 2024. I underwent a biopsy for a uterine cyst in November 2023 and subsequently had my menstrual period for almost 30 days. My gynecologist prescribed me birth control to stop my period. From mid-January until April, I was taking four birth control…
I Had No Idea Blood Clots Were Such a Risk to Pregnant Women: Amanda’s Story
In November 2023, I gave birth to a beautiful baby girl via C-section. It was our first child and we were so excited! A few weeks after giving birth, I had extreme pain in my stomach. I called my OB/GYN and they told me to take an anti-gas medication and see what happened. The pain…
I Experienced PTSD: Frances’ Story
I had an appointment with my PCP on October 5, 2019 for shortness of breath. I could barely walk to my car from his office door. My lower legs were hurting. I was 56 and on no medications. He referred me to a cardiologist. The following day, after my morning coffee, I could hardly walk.…
I’ve Learned to Navigate the Challenges of Being a Survivor: Daisy’s Story
In 2022, I was running three times a week training for my first half marathon when I noticed swelling and cramping in my left leg . I shrugged it off as overtraining or a Baker cyst behind my knee. Until that point, I had been a very healthy 44-year-old wife, mom, and teacher. I never…
