Factor V Leiden
I Was Fortunate to Have Survived This: Joe’s Story
In June 2017, I noticed a pain in my left calf. I had been walking several days a week, so I thought I may have pulled a muscle. I spent time trying to stretch it out over the next week, but it persistently got worse. The pain I had been having in my calf then…
A Blood Clot is Nothing to Mess Around With: Marshall’s Story
Last July, I was told I have factor V Leiden. I was unfamiliar with this, but my doctor said I didn’t need to do or take anything for it, so went about my life. Less than a year later, I was having a lot of pain in my left leg and thought maybe I had…
I Thought I Was Having a Heart Attack While Holding My Newborn: Megan’s Story
When I was 37 weeks pregnant with my first child, I began experiencing a painful, pressurized cramping sensation in my upper thigh that was dismissed by three different OB/GYNs during my weekly appointments. They assured me it was just the baby putting pressure on nerves and ligaments in my pelvis. However, at 17 days post-delivery…
If Your Symptoms Persist, Get Another Opinion: Lauren’s Story
In September 2007, I had just started my freshman year of college. I had gotten a job at the bookstore, and on my first day, I passed out while folding T-shirts. I had never passed out before so I panicked, called my mom, and went to a local urgent care clinic. After running a few…
Don’t Ignore Calf Pain or Shortness of Breath: Scott’s Story
My dad had deep vein thrombosis (DVT) many years ago and was diagnosed with factor V Leiden. Because of this, I was tested and found to have inherited this mutation as well. Thanks, Dad. In 2019, my calf was swollen and painful. The doctor sent me to get an ultrasound. It was a DVT. After…
The Pain in my Lungs and Back Returned: Isabelle’s Story
My cousin, who was 22, died of a pulmonary embolism when I was 10 years old. At autopsy, she was found to have protein C resistance, explained by the factor V Leiden mutation. As this mutation is genetic, the whole family was tested. I was found to be a carrier of this mutation, and I…
I Had Run 16 Miles the Day My Clot Was Discovered: David’s Story
I had a pulmonary embolism in the fall of 2016. I was just 24 years old and was an avid runner/marathoner. I had completed about 10 marathons, including the iconic Boston Marathon. At the time, I didn’t really know what a blood clot was, and I completely missed the signs of a blood clot…
Knowledge is Power: Stephanie’s Story
When I was eight months pregnant, my grandmother passed away. My blood pressure began to spike, and I was diagnosed with gestational hypertension. I ended up being induced at 37 weeks in order to keep the baby safe. The night I delivered my daughter, my dad went into cardiac arrest. He passed away a week…
Make Sure to Move Around After Surgery: Jake’s Story
I had abdominal surgery in July 2020 and had a difficult recovery. I could barely move. On Sunday, October 18, 2020, I woke and showered. I was home alone — my wife was visiting her brother. While climbing the stairs back to our bedroom, I became extremely short of breath. Despite that, I made my…
Nurses Say I’m a Miracle: Marcus’ Story
I am a 39-year-old Native American. I have had 23 pulmonary emboli (PE) and 31 incidents of deep vein thrombosis (DVT) starting at age 22, caused by the factor V Leiden mutation. I also have congenital protein C and S deficiencies. Nurses say I’m a miracle and call me a medical anomaly. Doctors ask…
