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Factor V Leiden

Not Just Calf Pain: Kayla’s Story

During the summer of 2012, I was going into my senior year of college and was training for Kent State’s Annual Black Squirrel 5k Race. I grew up playing soccer and I figured running a 5k would be a breeze. Little did I know, it was going to change my life forever. I was up…

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Blood Clot Survivors Can Do Anything: Ashley’s Story

In December 2013, I joined a local gym after just moving to a new area. I spent a lot of time doing group classes and walking on the treadmill. One day while I was walking, I looked down and noticed some swelling in my lower left leg. I figured the swelling was just from the…

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A Family Affair: Kathy’s Story

“I have shortness of breath.” This was the oft-repeated comment to each of my doctors. I was diagnosed with breast cancer in April 2020. By August 2020, I had major surgery that included three surgeons: breast cancer surgeon, thoracic surgeon, and plastic surgeon. This was followed up by 30 rounds of radiation. I also complained…

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My Doctor Said I Was Fine, My Intuition Saved My Life: Chriselda’s Story

During my first pregnancy at 15 years old, I started to have intense burning and numbness on my left side groin and hip region that my OB/GYN stated was normal pregnancy pain. After giving birth, I followed up with my primary doctor and neurologist. All of my doctor’s visits concluded with no diagnosis. My second…

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My PE Gave Me a New Perspective on Health Inequities: Vanessa’s Story

At 15 years old, I began taking hormonal contraceptives to relieve migraines. I received my prescription quickly after a brief medical exam where I was asked about my family history. I never imagined my journey on hormonal contraceptives would end abruptly nine years later after an emergency room diagnosis of bilateral pulmonary emboli, or bloods…

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I Tried to Push Through the Pain: Jenna’s Story

It was 6 p.m. on a cold Wednesday night in February 2014. My legs were dangling from the patient table as I sat anxiously at an urgent care facility waiting for the doctor to come in. My right calf had continued to swell and throb over the last several days, to the point where I…

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Seeking A Second Opinion Saved My Life: Kathleen’s Story

In 2016, life was normal. I was balancing a full-time desk job, motherhood, and the excitement of a second pregnancy. However, around 32 weeks into my pregnancy, things started to take a turn for the worse when I developed pain in my left hip. Worried, I went to the doctor, who, without fully examining me,…

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My Lifelong Experience with FVL: Gemma’s Story

I was diagnosed with the genetic clotting disorder factor V Leiden when I was 15 years old. My aunty (my dad’s sister) had a blood clot during pregnancy and she learned she had FVL, which led to members of my family, including me, being tested for it too. While growing up, FVL never had any…

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Two Blood Clots 20 Years Apart: Tim’s Story

My name is Tim. I was born, raised, and still live in Salem, Arkansas. Salem is a small town with many people raising cattle. My dad always had a few heads of cattle and, growing up, I would get on calves trying to ride them. I grew older and started getting on young bulls until…

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I’m a Two-Time Survivor of Pulmonary Emboli: Heather’s Story

Can you be too young to experience blood clots? At 22 years old, I wasn’t, and neither are you! I have heard “you are too young” at every medical provider’s office, but blood clots do not discriminate. Trust me, because I’m a two-time survivor of pulmonary emboli, also known as PEs or blood clots in…

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