Factor V Leiden
My PE Gave Me a New Perspective on Health Inequities: Vanessa’s Story
At 15 years old, I began taking hormonal contraceptives to relieve migraines. I received my prescription quickly after a brief medical exam where I was asked about my family history. I never imagined my journey on hormonal contraceptives would end abruptly nine years later after an emergency room diagnosis of bilateral pulmonary emboli, or bloods…
I Tried to Push Through the Pain: Jenna’s Story
It was 6 p.m. on a cold Wednesday night in February 2014. My legs were dangling from the patient table as I sat anxiously at an urgent care facility waiting for the doctor to come in. My right calf had continued to swell and throb over the last several days, to the point where I…
Seeking A Second Opinion Saved My Life: Kathleen’s Story
In 2016, life was normal. I was balancing a full-time desk job, motherhood, and the excitement of a second pregnancy. However, around 32 weeks into my pregnancy, things started to take a turn for the worse when I developed pain in my left hip. Worried, I went to the doctor, who, without fully examining me,…
My Lifelong Experience with FVL: Gemma’s Story
I was diagnosed with the genetic clotting disorder factor V Leiden when I was 15 years old. My aunty (my dad’s sister) had a blood clot during pregnancy and she learned she had FVL, which led to members of my family, including me, being tested for it too. While growing up, FVL never had any…
Two Blood Clots 20 Years Apart: Tim’s Story
My name is Tim. I was born, raised, and still live in Salem, Arkansas. Salem is a small town with many people raising cattle. My dad always had a few heads of cattle and, growing up, I would get on calves trying to ride them. I grew older and started getting on young bulls until…
I’m a Two-Time Survivor of Pulmonary Emboli: Heather’s Story
Can you be too young to experience blood clots? At 22 years old, I wasn’t, and neither are you! I have heard “you are too young” at every medical provider’s office, but blood clots do not discriminate. Trust me, because I’m a two-time survivor of pulmonary emboli, also known as PEs or blood clots in…
A Super Bowl Sunday Like No Other: Nina’s Story
Super Bowl Sunday in February of 2016 seemed like it was going to be just a normal day of eating great snacks, laughing at commercials, and judging the halftime show like I was a professional critic. I woke up that morning with what felt like I slept wrong or pulled something in my shoulder. I…
Blood Clots Are Not Supposed to Happen Again: Jill’s Story
My story began after a total right hip replacement at 36 years old. What was supposed to be a routine and life-changing surgery, due to only being in my thirties, turned out very differently. I developed a rare, but serious complication that resulted in the loss of my right quadriceps function. I had no feeling,…
The Road Trips That Changed My Life: Cydnee’s Story
At just 23 years old, I have suffered with not only a DVT (deep vein thrombosis or blood clot in the leg), but also a PE (pulmonary embolism or blood clot in the lung). I was taking estrogen-based birth control pills for two years when I had a visit with my primary care physician due…
Educate and Listen to Your Body: Tina’s Story
My two pregnancies were marked by dangerous blood clots – the first time when I was 23 weeks pregnant and the second time when I was 27 weeks pregnant. These were my first blood clots, which started in my leg as a deep vein thrombosis or DVT and moved from my ankle to my groin.…