Family history
Misdiagnosed With a Pulled Muscle: Dominique and Michelle’s Story
As told by her mother, Michelle Dominque, known to her friends and family as “Meeka,” loved the Maine outdoors and spent as much time as possible at camp on Moosehead Lake. Growing up, she enjoyed playing soccer, basketball, and softball. Meeka was a member of the Windsor Historical Society and volunteered at the Windsor Fair…
I Don’t Believe They Ever Knew in the ER That He Had a Blood Clot: Mike’s Story
As told by his wife Mendy My husband Mike was a healthy, active 50-year-old who suddenly passed on December 19, 2024, due to an unprovoked pulmonary embolism. His autopsy listed a saddle and bilateral main and right and left pulmonary thromboembolism, with complete 100% occlusions within the main right and left pulmonary arteries. The night…
My Symptoms Were Dismissed: Sophee’s Story
In April 2020, at the peak of COVID, I started experiencing pain in my lower back. During a walk with friends, a sharp pain would shoot down my right leg with every step. I tried to ignore the pain and continued the walk. Later that evening, my leg started to swell, and the pain got…
I Keep Worrying That It Will Happen Again: Michael’s Story
One day at work, I suspected that I had malaria. I went to the hospital and had a rapid test done, and the results showed that I was negative. But I went ahead and started taking malaria drugs for three days because I was feeling terrible. I sought treatment again, but at a different hospital,…
Stay Positive and Keep Pushing Through This: Elizabeth’s Story
I fully tore my ACL and partially tore my MCL and meniscus in March of 2024 playing volleyball. I first started developing blood clots in mid-April 2024 before my knee surgery. I started feeling nauseas, but ignored it, thinking it was from my menstrual cycle. The signs started coming one after the other: purple discoloration…
I Was Blown Away By the PTSD I Felt: Donna’s Story
On Christmas Eve 2023, I slipped on ice and broke my kneecap. I spent eight weeks in a splint and kept my leg elevated. Two weeks later, I experienced shortness of breath and chest pain suddenly. I went to the ER and was diagnosed with a submassive bilateral PE with right heart strain. I spent…
I Dealt With Pain and Swelling For Five Years: LaVon’s Story
After leaving the gym in 2017, I experienced the worst pain imaginable in my right leg without having an injury. I thought maybe the pain would leave after icing and elevating it. But, as the day went on, the pain and swelling worsened to the point I couldn’t stand or walk on it. I went…
Trust Your Instincts and Advocate For Your Loved Ones: Christian and Leah’s Story
On January 19, 2024, I received a call from my 13-year-old son, Christian. He was struggling to breathe. He’d been unwell for weeks, starting with an unknown virus that had progressed to pneumonia. Just the day before, he was diagnosed and treated in an ER. We took him back, assuming his breathing issues were a…
A Wakeup Call at 26: Meghan’s Story
One morning I was feeling lightheaded, so I checked my running watch and saw my heart rate was in the low 40s. I assumed I’d just stood up too quickly. As the day went on, I felt some chest pressure, which I chalked up to anxiety, something I often experience with POTS. But the pressure…
I Experienced DVTs on Three Occasions: Joanna’s Story
My first DVT was in July 1995, two weeks after the birth of my first (and only) child. I had a shooting pain in my left buttocks and rode an ambulance to the hospital with my newborn and husband. The ER docs did not seem to consider the possibility of a DVT and were looking…
