Family history

My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…

After having provoked blood clots from hip surgery (the symptoms I experienced included leg pain, shortness of breath, and chest pain) I asked my primary care physician if she would order bloodwork to determine if I have a clotting disorder. I was detailing my family members with similar issues: my mother had an unprovoked pulmonary…

In October 2020 at age 28, I woke up at 5 a.m. with back pain. It felt like I pulled a muscle. Throughout the day, the pain got worse. It hurt to sit or lie down. By the next morning, I was vomiting from pain and decided to drive myself to the emergency room. The…

I am a 2x pulmonary embolism survivor. My first one was in July 2013. I had traveled out of the country, come home, and traveled for my daughter’s soccer games. I was on birth control and overweight. We got home from a weekend tournament, and when I went to stand up, it felt like I…

I was working in the chemistry lab when suddenly I experienced a sharp, stabbing pain in my lower back that caused me to fall to the ground. I was rushed to the nearest hospital and, after some tests, I was sent home with the diagnosis of muscle spasms. From that day onwards, the pain in…

As told by his wife, Allison In January 2017, my husband Brian and I had been married for one year, and I had just given birth to our son seven weeks earlier. Brian started mentioning that he had bad calf pain. For a man that never complained, this was odd, but I didn’t know to…

On Valentine’s Day 2013, I woke up with what I thought was a stomach virus. A few hours later, I was in the ER with a diverticulitis attack that split open my intestine and spent 10 days in the hospital. A few months later, I had another diverticulitis attack, but I caught it early and…

In 2011, I suffered the first of seven blood clots. This was the start of my new life and a wake-up call heard loud and clear. Little did I know during in the early days about the connection that would surface dating back to the day I lost my only parent, my mother, to a…

In February 2023, Gerry shared his family’s serious challenges with blood clots. He’s now updating it to reflect significant new results from the genetic research project his family is doing with Yale Smilow Cancer Center. Gerry’s presented his family’s story to five Senate/House committee staff as part of Capitol Hill Day on March 6, 2024…

As told by his brother, Brandon. My brother Joel was sick with the flu for a couple of days at Marietta College where he was a freshman linebacker on the football team and a petroleum engineering major. He woke up one morning and told my mother by phone he was having difficulty breathing. No one…