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My Life Is Not the Same: Lisa’s Story

I remember how excited I was. I was five months pregnant with my son. I had just started feeling him kick and move and I was busy planning the nursery, clothes, pictures, and working. When I left work on a Friday, my left leg was heavy and I was dragging it. Over the weekend my…

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The Lifelong Implications of Blood Clots: Lisa’s Story

I was first blindsided by deep vein thrombosis after the birth of my second child in 1993. Shortly after she was born, I remember stumbling on the steps on my way upstairs after preparing a middle-of-the-night bottle. I thought I had pulled a muscle, and the growing pain in my leg didn’t alarm me. But…

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I Was Told I Was Too Young for Blood Clots: Audrey’s Story

At 20 years old, I was healthy, fit, active, and recovering from an ACL tear from a year and a half prior. When I finally went in for reconstructive surgery on June 19, 2020, it was at the height of the COVID-19 pandemic, already a very stressful time. I was aware that I had a…

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The Doctor Didn’t Think I Would Live: Tabitha’s Story

It was one of the most exciting times! After six long weeks of wearing an air cast, I had just received news that I could get it removed. I told the doctor that my leg had been cramping, but he said it should subside once the cast was off and I moved around. Later that…

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Blood Clots in the Arm are Rare, But I Had One: Kiersten’s Story

About 15 years ago, my dad had a blood clot in his leg (deep vein thrombosis) and testing showed he had factor V Leiden. Since it’s a genetic disorder, my two sisters and I got tested. I tested positive for factor V Leiden as well as one of my sisters and one did not. So,…

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Water Aerobics Keeps the Swelling Down: Gus’ Story

I woke up one morning in 1978 to find that my right leg was swollen to twice its size. I called my doctor, who told me to come in immediately. He pressed his thumb into my ankle and created a ½-inch dent to show me how swollen I was and sent me to the hospital.…

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It Took Me Weeks to Come to Terms With My Diagnosis: Sharon’s Story

I started to feel pain under my left shoulder blade and thought I had pulled a muscle. I iced it and it started to feel better. But the next day, I woke up feeling worse. The pain had expanded around my rib cage on both sides, making it challenging to breathe. I went to work…

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No One Told Me What Was Going On: Cassandra’s Story

I am a 41-year- old woman. I was diagnosed with a massive pulmonary embolism (PE) and a large deep vein thrombosis (DVT), respectively, in my lung and left calf, in March of 2014. I had no idea what was going on. I was making my kids a snack and got so dizzy that it literally…

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The Older I Get, the Scarier it Gets: Brenda’s Story

In 1983, I began experiencing pain in my side, shortness of breath and coughing up blood. At the ER, I was diagnosed with pleurisy, which is inflammation of the tissues that line the lungs and chest cavity. I was only 17 years old. Two weeks later, I began having pain in my left groin and…

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I Had Clots in My Lungs the Size of Baseballs: Demetrius’ Story

I was first diagnosed with pulmonary emboli (PE), or blood clots in my lungs, on October 23, 2017. Doctors told me it was a miracle that I did not go into cardiac arrest and die because the clots in both lungs were the size of baseballs. I was rushed into emergency surgery to remove the…

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