Filter Patient Stories by tags…

Family history

A Combination of Missed Risk Factors: Gina’s Story

In 2017, at 21 years old, I was undergoing my third surgery on my left knee after I had torn my ACL and meniscus playing college basketball. I was back on the court a few short weeks later, but felt that my hamstring was unusually tight. This didn’t seem right to me, so I decided…

Read the full story

Living with Post-Thrombotic Anxiety: Holly’s Story

I had my first pulmonary embolism (PE) at the age of 30. My symptoms began with prolonged shortness of breath for about six weeks. There were many days when I woke up unable to breathe. I disregarded this symptom because I assumed I was just out of shape. However, my shortness of breath got progressively…

Read the full story

Know Your Family Health History: Kelly’s Story

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood, until I finally gained some life and crawled to call 9-1-1. When the medics arrived, I was barely able to breathe and went into cardiac arrest three times.…

Read the full story

My Commitment to CTEPH Awareness: Harry’s Story

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …

Read the full story

The Day that Changed My Life Forever: Kelly’s Story

I was diagnosed with bilateral pulmonary emboli, or blood clots in my lungs, on July 20, 2020, at the age of 28. This clotting was provoked by estrogen-based birth control combined with immobility due to a recent wisdom teeth extraction. This was a day I will never forget and a day that changed my life…

Read the full story

A Family Affair: Kathy’s Story

“I have shortness of breath.” This was the oft-repeated comment to each of my doctors. I was diagnosed with breast cancer in April 2020. By August 2020, I had major surgery that included three surgeons: breast cancer surgeon, thoracic surgeon, and plastic surgeon. This was followed up by 30 rounds of radiation. I also complained…

Read the full story

Educate and Listen to Your Body: Tina’s Story

My two pregnancies were marked by dangerous blood clots – the first time when I was 23 weeks pregnant and the second time when I was 27 weeks pregnant. These were my first blood clots, which started in my leg as a deep vein thrombosis or DVT and moved from my ankle to my groin.…

Read the full story

Take Note if You’re Taking the Pill: Leani’s Story

I am a 23-year-old female from South Africa who was on the hormonal birth control pill for skin purposes. As a human physiology and genetics graduate, I knew the risks of taking contraceptives and how it increases blood viscosity, or thickness, but I never thought that it was going to happen to me, even though…

Read the full story

Grateful to Be Alive: Melanie’s Story

I am 53 years old, a busy business owner, wife, and mother. Being diagnosed with PE has rocked my world. I ran a marathon in May 2016. A month later, during my annual exam, my gynecologist suggested I take birth control to “get through menopause without having to deal with the nuisances.” A voice inside…

Read the full story

Youth Doesn’t Equal Invincibility: Helen’s Story

The day my life almost ended was a picturesque, snow-dappled Saturday in December. I was a 22-year-old on an adventure, visiting Germany for the first time and staying with some old friends. I couldn’t wait to see what an authentic German “Weihnachten” had to offer. Little did I know, my life was about to be…

Read the full story