Family history

I discovered that I was heterozygous for the factor V Leiden mutation in June of 2000 after my mother tested positive during a workup for superficial thrombophlebitis. My primary care physician recommended that I be tested, since I was taking oral contraceptive pills. She also had a friend who had been recently diagnosed with factor…

JUST LISTEN… If you are pregnant, you ARE at risk for DVT. Katiesvoice.org is dedicated to the memory of Katie M. Projansky (Anderson) and the promise of preventing DVT/PE related deaths in pregnancy. Katie’s Voice is an example of how the seeds of personal tragedy can blossom into great hope and possibility. It was five…

Lori Preston, founding member of NBCA, learned of her inherited clotting disorder during pregnancy: “I remember the conversation as if it were yesterday. My mother shared with me the painful recollection of the loss of her stillborn son she delivered 14 months before she gave birth to me. We never talked about this sad experience again, not until…

My Name is Helen Smith. I’m 36 years old and have a genetic blood clotting disorder (thrombophilia) that could have taken my life twice. This is my story. In January 2008, I delivered my third son via cesarean section. Since this would my last planned pregnancy, I also elected to have a tubal ligation performed…

In October 2012, I started to feel a pain in my left calf. I immediately thought I pulled a muscle, so I tried stretching and even got new tennis shoes.  The pain would not go away and after about three weeks, and shortness of breath joined in. I had to take breaks walking to class…

I am a healthy 23 year old who exercises 6 times a week, eats healthy food, and has never smoked. After returning from nearly a year overseas, I decided to change my lifestyle and lost nearly 20 kg (44 pounds) in the past 5 months. During this period I became really in tune with my…

I was 25 years old in January 2011, and I knew nothing about blood clots.  Several months prior to that January I felt a mild, irritating pain in my right side.  It occurred mainly when I was laying down too long, hiccupping, or when my breathing was heavy. I went to my doctor; she ordered…

Amanda Liimatainen was caught by surprise when she was diagnosed with a DVT.  Her mother had a pulmonary embolism at age 46, and she tried to make healthy choices to prevent them. My mother, who is a nurse, had a pulmonary embolism (PE) when she was 46 and I was 16.  After her treatment with blood…

Brianne Paisley is pregnant and has Protein C deficiency.  She had a large DVT in her groin during this pregnancy for which she self-injected with low molecular weight heparin, but is now awaiting the birth of her second child. My name is Brianne Paisley, and I want to share my story with anyone and everyone…

Lauren Murdock had venous clots in her brain that seemed to come out of the blue during her time at college, but she found positive ways to cope. 2010 started off as an amazing year for me.  I was adjusting to life at a new university, socially active on campus, and had adopted a healthy,…