Gaslighting
Never Stop Advocating For Yourself: Nicole’s Story
On December 11, 2024, I went to the emergency room because my entire right arm was swollen. My father told me not to go since I wasn’t in pain and already had a doctor’s appointment scheduled for the next day, but something told me to get it checked out. I truly believed nothing serious was…
I Was Repeatedly Misdiagnosed and my Symptoms Were Dismissed: Liz’s Story
After a dilation and curettage (D&C), my doctor tore my cervix. I was given medication to stop the bleeding, but I passed out in the hospital from blood loss five days later. My doctor gave me tranexamic acid (TXA) to control the hemorrhaging. Later that day, I started feeling a burning sensation in my chest.…
Always Pay Attention to Changes in Your Body: Kristian’s Story
In May of this year, I took a short flight, only about two and a half hours one way, and soon after, I noticed a cramping sensation in my right calf. I assumed it was just soreness or dehydration, so I ignored it for a couple of days. When the pain didn’t go away, I…
Advocate For Yourself: Fallan’s Story
In February 2025, while at work, I started developing a terrible headache, fever, chills, and body aches. I assumed I was coming down with the flu. I spent a day in bed watching TV and resting. Two days later, the flu-like symptoms subsided, but I developed stiffness and pain in my neck. Within 24 hours,…
I Learned to Love My Body Again: Andreea’s Story
Two weeks after a 68-mile bike ride, I couldn’t straighten my leg, and my veins bulged. “It’s just a bruise,” the ER doctor said, looking at my leg. He dismissed it the same way that the sports doctor and physical therapists did. But weeks later, my leg looked blue with spider veins. I sent a…
As a Physician, I’m More Aware of Looking for Blood Clots in my Patients: Lynette’s Story
In 2014, while in podiatry school, I went to the student health center because I was short of breath and was coughing up blood. The nurse practitioner diagnosed me with bronchitis. Less than two weeks later, I learned the truth — I had a saddle pulmonary embolism, which means a large blood clot was blocking…
Blood Clots Can Be Silent and Misleading: Jamie’s Story
Five days before everything came to light, I sat in a rheumatologist’s office explaining my concerns. Instead of investigating, she dismissed me, chalking it all up to my Ehlers-Danlos syndrome. My after-visit summary simply said to “wear spandex-type garments,” and there was no more that rheumatology could do for me. I left feeling unheard and…
Fight For Yourself: Sarah’s Story
After two long months of debilitating headaches and vision problems, I was finally diagnosed in July 2025 with a cerebral venous sinus thrombosis (CVST), a rare and dangerous clot in the veins that drain the brain, at 24 years old. My first ER trip was in May, when I showed up with stabbing head, neck,…
If You Feel Like Something is Wrong, Please Advocate for Yourself: Nicole’s Story
On October 27, 2024, I was diagnosed with cerebral venous sinus thrombosis (CVST). There was a large blood clot taking up the transverse and sigmoid portion of the venous sinus of my brain. I am still dealing with some neurological deficits. My symptoms started while I was working. Looking at the computer screen, numbers and…
You’re Never Too Young to be Diagnosed with a Blood Clot: Maudi’s Story
My story starts on a fun family trip to New York City. The first day after our flight, I woke up with the most painful muscle cramp in my left calf. I stretched and walked it off throughout the day, and the pain subsided for a few hours. I went three more days of stretching…









