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Gaslighting

This Experience Changed the Course of My Life: Libby’s Story

When I was 18, I was diagnosed with multiple bilateral pulmonary emboli. I was an active young adult, attending university and playing volleyball for my school. I woke up one night not being able to catch my breath and felt crazy amounts of pain in my ribs, upper right quadrant of my abdomen, and back.…

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I’m Relearning How to Trust Myself: Hillary’s Story

Ah summertime, my favorite time of year. Except last year. Last year, I found myself with sudden side and chest pain, difficulty breathing, inability to fully stand or sit upright, and inability to recline back seated or lay down in any position. Within 24 hours of these symptoms, I went to the doctor. He treated…

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I Continue to be Gaslit: Stephanie’s Story

When I was around 23, I started to go to the doctor complaining about persistent, enduring headaches. I was told it was stress. I went to the optician, where I was immediately sent to the emergency eye hospital. I had idiopathic intercranial hypertension, which was causing vision loss due to my optic nerves being forced…

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I’m a Nurse and I Missed The Signs: Rachael’s Story

In April of 2024, I flew from Tennessee to California for work. The night after arriving, I woke up in the middle of the night with a bad calf cramp. The following day, my calf was extremely sore– like the worst muscle cramp I’d ever had. That same day, I took another flight from California…

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I Was Diagnosed With Unexplained Chest Pain: Kyndal’s Story

At the end of summer in 2018, I was days away from the beginning of my college soccer career at Furman University. Every day that summer, I was preparing my body physically for the demands of being a college athlete. During my last workout before I left for preseason, I began experiencing chest pain, shortness…

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I Never Thought It Would Happen to Me: Addie’s Story

I am a 24-year-old  old active and healthy woman. No real elevated risk factors for clots. I never thought it would be me. I had underwent an ablation, minimally invasive procedure to treat supraventricular tachycardia (SVT), which is an abnormally fast heart rate originating in the upper chambers of the heart (atria). They said that my SVT…

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I’m A Three-Time Pulmonary Embolism Survivor: Mallory’s Story

I am a three-time pulmonary embolism survivor! My first PE was in 2003 after childbirth complications (including a collapsed lung), which caused me to be hospitalized for one month. After I was released from the hospital, I returned one week later with shortness of breath while my lungs were still healing and stayed in the hospital…

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It Was The Beginning of My Transformation: Nicki’s Story

I just had my one-year clotiversary! Last Presidents’ Day, on February 19, 2024, I faced a life-altering struggle. After days of coughing up blood and an urgent care provider’s dismissive reassurance that I simply had a bad case of bronchitis, I finally found help in the emergency room. Doctors diagnosed me with an unprovoked pulmonary…

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My Symptoms Were Dismissed: Sophee’s Story

In April 2020, at the peak of COVID, I started experiencing pain in my lower back. During a walk with friends, a sharp pain would shoot down my right leg with every step. I tried to ignore the pain and continued the walk. Later that evening, my leg started to swell, and the pain got…

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I Have Medical PTSD From This Experience: Ariel’s Story

I had been struggling to breathe for a long time, but always thought it was anxiety or asthma. I had told my doctor for months I couldn’t breathe and she always treated me as if I was crazy. In August 2024, I started feeling really sick and had chest pain, I was tired and coughing…

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