Gaslighting
My Symptoms Were Dismissed: Sophee’s Story
In April 2020, at the peak of COVID, I started experiencing pain in my lower back. During a walk with friends, a sharp pain would shoot down my right leg with every step. I tried to ignore the pain and continued the walk. Later that evening, my leg started to swell, and the pain got…
I Have Medical PTSD From This Experience: Ariel’s Story
I had been struggling to breathe for a long time, but always thought it was anxiety or asthma. I had told my doctor for months I couldn’t breathe and she always treated me as if I was crazy. In August 2024, I started feeling really sick and had chest pain, I was tired and coughing…
I Knew Something Was Off: Sara’s Story
I ran my first marathon in April 2024 and eagerly began training for my second one. I quickly noticed that training was a lot more challenging than usual. I chalked discomfort in my shoulder up to lifting heavy weights in the gym and chest pain up to my sports bras being too tight. My heart…
My Doctor Dismissed My Leg Pain as Sciatica: Ashley’s Story
At 31 weeks pregnant, I was getting ready for the arrival of my baby when I started experiencing extreme pain in my left leg. I remember going to my baby shower and barely being able to walk. This was very concerning, so the next day, I called my OB/GYN and explained my symptoms. Unfortunately, she…
We Need More Voices, But Too Many of Us Aren’t Lucky Enough to Share Our Stories: Kyra’s Story
When I gave birth to my son, I was so excited to be a parent. But I began having headaches that were not normal. In the hospital, I was given medication to clot my blood because of slightly more than average blood loss. I was also given extra blood pressure checks because my blood pressure…
I Dealt With Pain and Swelling For Five Years: LaVon’s Story
After leaving the gym in 2017, I experienced the worst pain imaginable in my right leg without having an injury. I thought maybe the pain would leave after icing and elevating it. But, as the day went on, the pain and swelling worsened to the point I couldn’t stand or walk on it. I went…
Blood Clot Survivors Can Do Anything: Charles’ Story
In the summer of 2012, I was training hard, running, lifting weights, and eating clean. My goal was to be in my best shape for my best friend’s bachelor party in Las Vegas on Labor Day Weekend. My wife and I also took a trip to Europe. I was running along cobblestone streets and swimming.…
Trust Your Instincts and Advocate For Your Loved Ones: Christian and Leah’s Story
On January 19, 2024, I received a call from my 13-year-old son, Christian. He was struggling to breathe. He’d been unwell for weeks, starting with an unknown virus that had progressed to pneumonia. Just the day before, he was diagnosed and treated in an ER. We took him back, assuming his breathing issues were a…
I Was Described as Neurotic: Caroline’s Story
In April 2022 here in New Zealand, my first pulmonary embolism was detected by chance. I mentioned a fluttery heart while having a routine flu vaccine. This prompted the nurse to check, and she discovered an irregular rhythm. The doctor then ordered a few tests, including a D-dimer. By that night I was in the…
Today, I’m Blessed to Have My Health: Kimberly’s Story
I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email group) to learn more. Fifteen years later, with occasional SVTs and genetic testing now available, I was diagnosed with one factor V Leiden gene (heterozygous).…
