Filter Patient Stories by tags…

Gaslighting

I Refuse to Be a Victim: Mickey’s Story

After returning home from a weekend of skiing in Breckenridge, Colorado, I woke up with low back pain and pain in my chest on a Monday morning. I didn’t think much of it because it was normal for me to be sore after exercise, and I’ve always struggled with exercise-induced asthma as a lifelong Colorado…

Read the full story

This Has Completely Changed Everything: Andrea and Andre’s Story

Wednesday, January 18, 2023, will be a day I will never forget. It started as an ordinary day at home with my two children, Amelia, and Andre. My son Andre, who had just turned 3 a month before, had been sick for about a week. I had already taken him to the pediatrician just three…

Read the full story

Four DVTs Over the Years: Alejandra’s Story

In 2006, I was 31 years old, living in my home country of Venezuela, and 20 weeks pregnant with my first baby when I felt a pain like a knot in my left upper thigh. My mom suggested I keep my leg up the rest of the day and I could see my gynecologist in…

Read the full story

Advocating For Awareness Has Been Incredibly Rewarding: Dan’s Story

On July 31, 2021, after being misdiagnosed and sent home almost a week prior, I finally received a diagnosis that would forever change my life: sub-massive pulmonary emboli and pulmonary infarction. I call it “the back pain that saved my life.” My primary symptom was upper back tightness and discomfort, which I later learned was…

Read the full story

The Doctor Said a DVT Was Highly Unlikely: Kelly’s Story

One week I was a healthy 24-year-old hiking mountains, the next I was bedridden in a hospital with an unprovoked 20cm DVT. I had an unusual cramping pain in my leg on a Friday night. I took some painkillers and decided to sleep it off. The next morning I felt okay and set off for…

Read the full story

Three DVTs in Two Decades: Heather’s Story

I’m 43. My first DVT experience was at 19 years old while in college. Long story short, I was sent home by two different doctors over two months even though my leg was in excruciating pain and eventually could barely walk. The third doctor knew what was wrong with me within minutes and sent me…

Read the full story

Please Listen to Your Body: Kia’s Story

I’ve always had a history of health anxiety, always expecting the worst whilst hoping for the best. It took many years for me to manage my fears and understand when I was being rational or otherwise. Toward the end of April 2024, I had this horrible chest pain, directly along the left side of my…

Read the full story

My Teen Suffered a PE After Surgery: An Anonymous Parent

My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…

Read the full story

The ER Doctor Didn’t Know Birth Control Could Cause PEs: Betsy’s Story

On Sept. 7, 2016, I escaped sudden death by bilateral pulmonary emboli, a side effect of taking hormonal contraceptives. That morning, my heart was racing when I went to the bathroom to get ready. I was winded when I stood up. Denial had kept me from going, but I knew I needed to go to…

Read the full story

The PCP Who Dismissed My Concerns Was Dismissed By Me: Kay’s Story

After having provoked blood clots from hip surgery (the symptoms I experienced included leg pain, shortness of breath, and chest pain) I asked my primary care physician if she would order bloodwork to determine if I have a clotting disorder. I was detailing my family members with similar issues: my mother had an unprovoked pulmonary…

Read the full story