Gaslighting
The Doctor Said a DVT Was Highly Unlikely: Kelly’s Story
One week I was a healthy 24-year-old hiking mountains, the next I was bedridden in a hospital with an unprovoked 20cm DVT. I had an unusual cramping pain in my leg on a Friday night. I took some painkillers and decided to sleep it off. The next morning I felt okay and set off for…
Three DVTs in Two Decades: Heather’s Story
I’m 43. My first DVT experience was at 19 years old while in college. Long story short, I was sent home by two different doctors over two months even though my leg was in excruciating pain and eventually could barely walk. The third doctor knew what was wrong with me within minutes and sent me…
Please Listen to Your Body: Kia’s Story
I’ve always had a history of health anxiety, always expecting the worst whilst hoping for the best. It took many years for me to manage my fears and understand when I was being rational or otherwise. Toward the end of April 2024, I had this horrible chest pain, directly along the left side of my…
My Teen Suffered a PE After Surgery: An Anonymous Parent
My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…
The ER Doctor Didn’t Know Birth Control Could Cause PEs: Betsy’s Story
On Sept. 7, 2016, I escaped sudden death by bilateral pulmonary emboli, a side effect of taking hormonal contraceptives. That morning, my heart was racing when I went to the bathroom to get ready. I was winded when I stood up. Denial had kept me from going, but I knew I needed to go to…
The PCP Who Dismissed My Concerns Was Dismissed By Me: Kay’s Story
After having provoked blood clots from hip surgery (the symptoms I experienced included leg pain, shortness of breath, and chest pain) I asked my primary care physician if she would order bloodwork to determine if I have a clotting disorder. I was detailing my family members with similar issues: my mother had an unprovoked pulmonary…
I Almost Left the ER: Lucy’s Story
In October 2020 at age 28, I woke up at 5 a.m. with back pain. It felt like I pulled a muscle. Throughout the day, the pain got worse. It hurt to sit or lie down. By the next morning, I was vomiting from pain and decided to drive myself to the emergency room. The…
The Doctor Wanted to Send Me Home: Catalina’s Story
My heart was beating unusually and I felt tired; it was a long day. After family holidays and an accident on the road, we were trapped for several hours in the car. When I arrived at my destination, my heart still racing. I felt it in my neck. My heart rate was between 160-180. As…
Being Diagnosed with a PE was a Traumatic Experience: Lauren’s Story
In early April 2023, I underwent a complete hysterectomy. My recovery was complicated by uncontrolled pain and urinary retention, which required a Foley catheter for a week. I then started experiencing a UTI, which required hospitalization. I was finally improving by the end of April, but on May 5, 2023, I suddenly started to experience…
My Doctor Laughed At Me: Charmaine’s Story
I was involved in a motorbike accident on August 9, 2023, and had an injury to my left leg. I suffered severe pain but had to go to work. After struggling to walk, I went back to my doctor. He recommended bed rest for about five days. I asked him to admit me to the…
