IVC filter
My Current Diagnosis is Chronic Thromboembolic Disease: Ann’s Story
On Day 10 of a mild case of Covid and after running five miles that morning, I developed pain under my collarbone right before bedtime. I thought it might be a coronary vasospasm, which I get, so I took nitroglycerin. It didn’t help, so I decided to measure my oxygen, which was in the mid-80s.…
I Had No Idea Blood Clots Were Such a Risk to Pregnant Women: Amanda’s Story
In November 2023, I gave birth to a beautiful baby girl via C-section. It was our first child and we were so excited! A few weeks after giving birth, I had extreme pain in my stomach. I called my OB/GYN and they told me to take an anti-gas medication and see what happened. The pain…
She Thought She Was Protected: Jessica’s Story
As told by her sister Ashley My sister Jessica was diagnosed with deep vein thrombosis that caused her to have a pulmonary embolism when she was 21 and she almost died. She had an IVC filter placed at that time, but it didn’t keep her from developing another DVT in July 2023 that caused her…
There is Hope: Kacie’s Story
I developed my first deep vein thrombosis (DVT) and pulmonary embolism (PE) around 10 weeks pregnant with my second child. From then on, I was on enoxaparin sodium injections and everything was going great until 37 weeks, when the same feeling in my leg came back. We returned to the hospital where an ultrasound once…
I Advocate For Myself More: Jessi’s Story
In October 2021, I had a fall that caused my left knee to dislocate. It was determined that I had fractured my patella, and torn the medial patellofemoral ligament (MPFL) in my knee. Since I had a history of dislocations, I opted for an MPFL reconstruction to reduce the chance of dislocation in the future.…
Not Knowing What Caused my PEs is Frightening and Frustrating: Kaprena’s Story
I’m 47 years old and grateful to be alive. This is because I experienced pulmonary emboli (PE) on three separate occasions. About six weeks after giving birth to my second son, I began to feel tired and thought I was coming down with a cold. My mother suggested that I go to the emergency room…
The Perfect Provoked Storm: Jessica’s Story
I have never been “normal” when it comes to my health as a young adult. For 10 years, I struggled with severe stomach and esophagus problems. I developed an allergy to the medication that treats the conditions in my esophagus. So, this year, my health finally ran out of options. It wasn’t until April 2018…
The Right Treatment Changed My Life: Jan’s Story
In June 2011, 16 weeks after giving birth to my first child, I started having symptoms of back pain. As a 23-year-old new mother, I diagnosed myself with all sorts of things. I decided that the pain I was experiencing must be my kidneys reacting to alcohol after such a long time without any, and…
I Am My Own Best Healthcare Advocate: Michael’s Story
I am writing to share my story with the hope that it can help other people who may find themselves in a similar situation. I was misdiagnosed three times in November 2012, when I sought help for what I would describe as classic signs and symptoms of deep vein thrombosis (DVT), or blood clots in…
How I Overcame the Worst Time in My Life at 17 Years Old: Jenny’s Story
I always love to hear the stories of how people beat cancer and overcame diseases, but I never thought anything bad would happen to me. My name is Jenny, and I am a 17-year-old girl who lives in a small town in Iowa. In my high school, I am involved in many activities, including softball,…