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It’s Important to Listen to Your Body: Dan’s Story
On Valentine’s Day 2013, I woke up with what I thought was a stomach virus. A few hours later, I was in the ER with a diverticulitis attack that split open my intestine and spent 10 days in the hospital. A few months later, I had another diverticulitis attack, but I caught it early and…
If You Know Something Isn’t Right, Get a Second Opinion: Matt’s Story
I was at the Walmart self-checkout. I had been feeling sore and had a hard time catching my breath all day, and I collapsed in the self-checkout. I came to, and people were standing over me. I say I’m all right, but my pain is getting progressively worse. I ended up driving myself to the…
We Assume He Had Factor V Leiden: Landon’s Story
As told by his sister, Kenzie We made a family trip from Texas to Colorado at the end of July 2022, which is an 8-9 hour drive. Landon had asthma that was triggered by cedar. Since the trip, he had some allergy symptoms but associated that with the cedar. On August 5, 2022, my brother…
I Beat the Odds: Kyle’s Story
I experienced deep vein thrombosis during my senior year of college that turned into a pulmonary embolism, which derailed my college baseball career. My symptoms included shortness of breath, leg swelling, calf pain and fatigue. Upon being rushed into the ICU due to the size of my clot and severity of the PE, I was…
I’m Very Anxious: Joel’s Story
In 2004, following two invasive surgeries in four weeks, I had a severe event. I had an immediate pain in my calf and suspected a blood clot. I told the surgeon and he said I didn’t have the symptoms of a blood clot, and aside from my calf pain he was right. There was no…
I’m Back to Doing Everything I Want to Do: Joe’s Story
My story began with a nagging ache in my calf. I had ignored it for a few days thinking it was a pulled muscle. Other than a leg cramp, I did not have any other symptoms. I had done my usual six-mile run and worked in the yard later that day. It was not until…
Our Family Has a Void That Will Never Be Filled: Blake’s Story
In the weeks leading up to Thanksgiving 2018, Blake was experiencing pain in his right leg, which he attributed to a pulled muscle. On Thanksgiving, he seemed to have mild cold symptoms and a slight limp. We discussed that he should go to the doctor if he didn’t feel better soon. That was the last…
With Gratitude, Optimism is Sustainable: Todd’s Story
In 2011, I suffered the first of seven blood clots. This was the start of my new life and a wake-up call heard loud and clear. Little did I know during in the early days about the connection that would surface dating back to the day I lost my only parent, my mother, to a…
Don’t Ignore Symptoms of a Blood Clot: Marvin’s Story
In 2017, I was having redness, warmth, pain, and heaviness in my right leg. I was 17 at the time and I had just begun my senior year in high school a few weeks before. I was in school when I first saw that my leg was red, and I made a mistake by not…
UPDATE – Thrombosis Has Deeply Impacted My Family: Gerry’s Story
In February 2023, Gerry shared his family’s serious challenges with blood clots. He’s now updating it to reflect significant new results from the genetic research project his family is doing with Yale Smilow Cancer Center. Gerry’s presented his family’s story to five Senate/House committee staff as part of Capitol Hill Day on March 6, 2024…