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Diagnosed With Five DVTs After a Scooter Accident: Xio’s Story

In March 2011, I had a C-section and developed a superficial clot in my left leg, My treatment was compression socks and I felt better after a week. Years later, on March 30, 2024, I had a fall from an electric scooter. All my weight fell on my left leg, but somehow, I got up…

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My Doctor Dismissed My Leg Pain as Sciatica: Ashley’s Story

At 31 weeks pregnant, I was getting ready for the arrival of my baby when I started experiencing extreme pain in my left leg. I remember going to my baby shower and barely being able to walk. This was very concerning, so the next day, I called my OB/GYN and explained my symptoms. Unfortunately, she…

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Use This As Your Reason to Live: Tilly’s Story

It began with excruciating back pain and shooting pains up my left leg. I felt unable to walk. The week that I noticed my first symptoms, I was back and forth to urgent care and the doctors. They kept saying the same thing, “You have nerve damage” (sciatica). They gave me painkillers and told me…

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I’m Grateful For My Team of Doctors and My Dog Kiko for Saving My Life: Esmaralda’s Story

I had my first DVT and PE almost five years ago at 21 years old. My leg was hurting, but I kept ignoring it. When my dog Kiko started sniffing my leg and whining, I felt that something was wrong because that was unusual behavior for him. I went to urgent care, and they sent…

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I Was Described as Neurotic: Caroline’s Story

In April 2022 here in New Zealand, my first pulmonary embolism was detected by chance. I mentioned a fluttery heart while having a routine flu vaccine. This prompted the nurse to check, and she discovered an irregular rhythm. The doctor then ordered a few tests, including a D-dimer. By that night I was in the…

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Today, I’m Blessed to Have My Health: Kimberly’s Story

I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email group) to learn more. Fifteen years later, with occasional SVTs and genetic testing now available, I was diagnosed with one factor V Leiden gene (heterozygous).…

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I Experienced DVTs on Three Occasions: Joanna’s Story

My first DVT was in July 1995, two weeks after the birth of my first (and only) child. I had a shooting pain in my left buttocks and rode an ambulance to the hospital with my newborn and husband. The ER docs did not seem to consider the possibility of a DVT and were looking…

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My Clot Started 10 Years Before It Was Found: Jana’s Story

In December 2022, I had the worst pain in my life in my left side of my buttocks after working out. Being a physical therapist and a retired high-level figure skater, I assumed I had strained a muscle until I was unable to walk or bear weight on my left leg. After three ER visits…

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I’m Grateful for the Insightful Urgent Care Provider Who Saved My Life: Mary’s Story

I had lower right leg pain for more than a month. I finally went to urgent care in October 2022. I described the pain as a pinging inside my leg and I thought it was a stress fracture. The provider asked a few questions about medications. I told her I took tamoxifen to reduce a…

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Three DVTs in Two Decades: Heather’s Story

I’m 43. My first DVT experience was at 19 years old while in college. Long story short, I was sent home by two different doctors over two months even though my leg was in excruciating pain and eventually could barely walk. The third doctor knew what was wrong with me within minutes and sent me…

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