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I Was Described as Neurotic: Caroline’s Story

In April 2022 here in New Zealand, my first pulmonary embolism was detected by chance. I mentioned a fluttery heart while having a routine flu vaccine. This prompted the nurse to check, and she discovered an irregular rhythm. The doctor then ordered a few tests, including a D-dimer. By that night I was in the…

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Today, I’m Blessed to Have My Health: Kimberly’s Story

I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email group) to learn more. Fifteen years later, with occasional SVTs and genetic testing now available, I was diagnosed with one factor V Leiden gene (heterozygous).…

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I Experienced DVTs on Three Occasions: Joanna’s Story

My first DVT was in July 1995, two weeks after the birth of my first (and only) child. I had a shooting pain in my left buttocks and rode an ambulance to the hospital with my newborn and husband. The ER docs did not seem to consider the possibility of a DVT and were looking…

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My Clot Started 10 Years Before It Was Found: Jana’s Story

In December 2022, I had the worst pain in my life in my left side of my buttocks after working out. Being a physical therapist and a retired high-level figure skater, I assumed I had strained a muscle until I was unable to walk or bear weight on my left leg. After three ER visits…

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I’m Grateful for the Insightful Urgent Care Provider Who Saved My Life: Mary’s Story

I had lower right leg pain for more than a month. I finally went to urgent care in October 2022. I described the pain as a pinging inside my leg and I thought it was a stress fracture. The provider asked a few questions about medications. I told her I took tamoxifen to reduce a…

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Three DVTs in Two Decades: Heather’s Story

I’m 43. My first DVT experience was at 19 years old while in college. Long story short, I was sent home by two different doctors over two months even though my leg was in excruciating pain and eventually could barely walk. The third doctor knew what was wrong with me within minutes and sent me…

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I No Longer Live in Fear of Another Re-Clot: Staci’s Story

In July 2018, I developed a nagging dry cough and chest discomfort. I have a history of pneumonia, so I went to urgent care for a chest x-ray. It was clear and I was told I likely have a viral chest cold. The cough continued to linger on, not responding to over-the-counter cough medicine. As…

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This Experience Helped Me Find My Love For Medicine: Zoe’s Story

Three days after my 18th birthday, I experienced severe swelling in my left leg. I assumed I pulled a muscle as I went ice skating on my birthday, but that soon changed. I went to school as normal and my teachers and friends noticed that my leg was purple and three times the size of…

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Listen to Your Intuition, Manage Fear, and Advocate For Yourself: Julie’s Story

In October 2023, I had just returned from a Florida vacation. The following day, I woke up with a subtle ache in my left calf. When I shared with my husband, he casually said, “Do you have a blood clot?” But after years of international flights with no issues, it was easy to attribute the…

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The Pressure and Pain Were Unbearable: Autumn’s Story

No one will ever forget when the world shut down because of COVID in 2020. A few days later, I started to lose feeling in my left leg. Whenever I stood up, my leg turned purple. While everyone else was taking walks to pass the time during lockdown, I was finding it harder and harder…

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