Filter Patient Stories by tags…

Mental health

This Experience Changed the Course of My Life: Libby’s Story

When I was 18, I was diagnosed with multiple bilateral pulmonary emboli. I was an active young adult, attending university and playing volleyball for my school. I woke up one night not being able to catch my breath and felt crazy amounts of pain in my ribs, upper right quadrant of my abdomen, and back.…

Read the full story

I’m Relearning How to Trust Myself: Hillary’s Story

Ah summertime, my favorite time of year. Except last year. Last year, I found myself with sudden side and chest pain, difficulty breathing, inability to fully stand or sit upright, and inability to recline back seated or lay down in any position. Within 24 hours of these symptoms, I went to the doctor. He treated…

Read the full story

I Broke Up With My Doctor: Ana’s Story

In 2021, I was experiencing shortness of breath, blue lips, constant fatigue, and brain fog. I could barely walk up one flight of stairs to my apartment and would collapse at the door many times. My doctor kept saying it was bronchitis and would regularly test for Covid, which always came back negative. I ultimately terminated…

Read the full story

I Continue to be Gaslit: Stephanie’s Story

When I was around 23, I started to go to the doctor complaining about persistent, enduring headaches. I was told it was stress. I went to the optician, where I was immediately sent to the emergency eye hospital. I had idiopathic intercranial hypertension, which was causing vision loss due to my optic nerves being forced…

Read the full story

Be Informed About Your Clotting Risk: Abby’s Story

On December 19, 2024, I noticed that my right thigh hurt and was discolored (purple-ish) but dismissed it, thinking that it was just bad circulation that would go away. Later that night, I felt extremely light-headed, my vision went dark and almost passed out. My mom and I rushed to the hospital because something was…

Read the full story

I Never Thought It Would Happen to Me: Addie’s Story

I am a 24-year-old  old active and healthy woman. No real elevated risk factors for clots. I never thought it would be me. I had underwent an ablation, minimally invasive procedure to treat supraventricular tachycardia (SVT), which is an abnormally fast heart rate originating in the upper chambers of the heart (atria). They said that my SVT…

Read the full story

I’m A Three-Time Pulmonary Embolism Survivor: Mallory’s Story

I am a three-time pulmonary embolism survivor! My first PE was in 2003 after childbirth complications (including a collapsed lung), which caused me to be hospitalized for one month. After I was released from the hospital, I returned one week later with shortness of breath while my lungs were still healing and stayed in the hospital…

Read the full story

My Risk Factors Were a Perfect Storm: Presley’s Story

On March 31, 2023, while playing high school softball, an opposing player slid into me, breaking my tibia and fibula. I was taken to a nearby hospital via ambulance where I underwent surgery the next morning. My leg had some swelling over the next couple of months, but it was never bothersome until June 8.…

Read the full story

I Have Medical PTSD From This Experience: Ariel’s Story

I had been struggling to breathe for a long time, but always thought it was anxiety or asthma. I had told my doctor for months I couldn’t breathe and she always treated me as if I was crazy. In August 2024, I started feeling really sick and had chest pain, I was tired and coughing…

Read the full story

Don’t Hesitate to Get Checked Out if You Have Problems Breathing: Ginger’s Story

In late July 2024, I started having a series of high fevers that would come and go for several weeks. One Monday morning, I felt out of breath and couldn’t finish my many conference calls. I wasn’t having any pain or fever, just out of breath and tired. By that night, I could only lay…

Read the full story