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Mental health

The Hospital Was Baffled By My Symptoms: Tyler’s Story

In 2018, when I was 21 years old and just over three months postpartum, I was diagnosed with multiple pulmonary emboli (PE). I started having trouble breathing in the early evening which I assumed was just my asthma acting up. This continued all through the night and into the morning. I was using my asthma…

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I’m in Constant Fear for My Safety Due to the Blood Thinners: Julia’s Story

In December of 2022, I had surgery on my femur. Five days later, I felt an excruciating pain in my calf and knew something was wrong. I went to the ER and was diagnosed with deep vein thrombosis (DVT) that occluded almost my whole leg. I was prescribed  blood thinners and I’ve been taking them…

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I Still Have a 40% Blockage in my Main Vein: Leonard’s Story

In November of 2021, I had COVID and was down and out for two weeks. As I was starting to feel better, pain began developing in my left leg. At first, I thought I was dehydrated or lacking protein.    Two days went by. My left leg was twice the size of my right leg, and…

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The Pain in my Lungs and Back Returned: Isabelle’s Story

My cousin, who was 22, died of a pulmonary embolism when I was 10 years old. At autopsy, she was found to have protein C resistance, explained by the factor V Leiden mutation. As this mutation is genetic, the whole family was tested. I was found to be a carrier of this mutation, and I…

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I Had Run 16 Miles the Day My Clot Was Discovered: David’s Story (with an update)

Update (July 29, 2024): I was excited to make my professional triathlon debut in Maine this past weekend, competing as the only athlete in the field with Factor V and needing to take blood thinners twice a day. It was a non-wetsuit swim, and I was really happy with my bike split on one of…

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I Thought I Had COVID: Talicia’s Story

In January 2021, I woke up in the middle of a Sunday night feeling like I needed to put ice water on my body. As I carried the glass of ice water back to bed, I suddenly found myself struggling to make it to the couch. What seemed like minutes later, I woke up with…

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I Missed Two Doses of My Blood Thinner: Diana’s Story

In August 2020, I had severe left calf cramping, but I didn’t think much of it. The next morning, I awoke to a sensation going up my leg. I felt an explosion in my chest and could not catch my breath. I figured it was anxiety until the next day, when I couldn’t handle the…

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‘Am I Going to Die?’: Christopher’s Story

I had an injury to my forearm in June 2022. Less than a week later, I started getting severe chest pains. I was taken to the hospital with c-reactive protein test (CRP) markers of 93 and was sent home with antibiotics.   A week later, I experienced the same pain, but worse. This time a CT…

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What Affects Me Most is the Anxiety: Jocelyn’s Story

I started to get sick very frequently around March 2019. I was having terrible colds and coughing all of the time. A few months later, I started having difficulty climbing stairs and couldn’t even walk without developing shortness of breath and feeling like I was having a heart attack.    I went to my primary care doctor…

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The Older I Get, the Scarier it Gets: Brenda’s Story

In 1983, I began experiencing pain in my side, shortness of breath and coughing up blood. At the ER, I was diagnosed with pleurisy, which is inflammation of the tissues that line the lungs and chest cavity. I was only 17 years old. Two weeks later, I began having pain in my left groin and…

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