Misdiagnosed
I’m More Mindful: Lainey’s Story
I was being evaluated for chest pain by a pulmonologist who was treating me with opioids. The night before my diagnosis, I was participating in a group yoga class where I won a T-shirt for sweating the most. I had pools of sweat under me like it was a Bikram class, but the A/C was…
Being Faced With Your Mortality is Life-Changing: Casper’s Story
Not long after I turned 21, I started to notice the veins on the left side of my chest becoming extremely prominent. My left arm felt like it was falling asleep constantly throughout the day. It was strange, but I just assumed I had pulled a muscle or slept on it wrong. I didn’t feel…
My Clot Started 10 Years Before It Was Found: Jana’s Story
In December 2022, I had the worst pain in my life in my left side of my buttocks after working out. Being a physical therapist and a retired high-level figure skater, I assumed I had strained a muscle until I was unable to walk or bear weight on my left leg. After three ER visits…
It’s an Ongoing Battle to Stay Well and Manage This Life Condition: Callum’s Story
At 29, I considered myself to be fit and almost indestructible. I don’t smoke, I don’t drink and I have a myriad of athletic accomplishments. I’ve run multiple marathons, I’m at a healthy weight, and I train in the gym regularly. All of the above left me feeling completely lost when I started to experience…
I Can Be a Survivor and Have a Life After This: Paula’s Story
My experience was in the summer of 2021. I woke one Sunday morning feeling shortness of breath, and I continued my day with increasing difficulty breathing. On Monday, I went to an urgent care clinic. They did not do a CT scan, they assumed because I was overweight and out of breath that it was…
Be Your Own Advocate: Jo Anna’s Story
My first pulmonary embolism was on August 15, 2015. I was on birth control for irregular cycles and began having pain in my lower right side, which I thought was a pulled muscle. A week after the symptoms, the pain was unbearable. I went to the ER and was diagnosed with a right lung pulmonary…
I Suffer From Health Anxiety and PTSD Since This Ordeal: Kerry’s Story
In October 2017, I had a long day working behind my desk and had not gotten up or hydrated much. After about 10 hours, I headed straight to a volleyball game as I played in a league. Midway through the game, I experienced a sharp, painful cramp in my right calf that would not subside.…
Advocating For Awareness Has Been Incredibly Rewarding: Dan’s Story
On July 31, 2021, after being misdiagnosed and sent home almost a week prior, I finally received a diagnosis that would forever change my life: sub-massive pulmonary emboli and pulmonary infarction. I call it “the back pain that saved my life.” My primary symptom was upper back tightness and discomfort, which I later learned was…
They Couldn’t Figure Out What Was Wrong: Shantelle’s Story
When I was 20, I had some pain in my leg. I chalked it up to a pulled muscle. In the next few days, it seemed to get worse. My mom convinced me to go to the hospital, but they told me I was constipated and sent me home. The pain continued to get worse…
I’m Happy to Be Alive: Lizzie’s Story
In September 2022, I underwent a foam sclerotherapy on the great saphenous vein in my left leg to treat a varicose vein. This is a minimally-invasive, non-surgical procedure that involves injecting a foam mixture into varicose veins to treat underlying vein conditions. At the time, I was unknowingly Covid positive for the second time in…
