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Misdiagnosed

You’re Not Too Young: Amy’s Story

Everything started when I was 16 years old, which was six years ago. I couldn’t breathe, and even while walking a few steps, I was out of breath. I was taken to the hospital for what they thought was a chest infection. They did not think it was blood clots because I was so young.…

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The Road Trips That Changed My Life: Cydnee’s Story

At just 23 years old, I have suffered with not only a DVT (deep vein thrombosis or blood clot in the leg), but also a PE (pulmonary embolism or blood clot in the lung). I was taking estrogen-based birth control pills for two years when I had a visit with my primary care physician due…

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Caught Off Guard: Olanna’s Story

March 2015 was the start of a health journey that would impact the rest of my life. Earlier that month, I was experiencing a slight, nagging pain in the back of my calf. After a few weeks of dealing with the symptoms, I made an appointment with my primary care doctor. Later that afternoon, I…

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An Ankle Injury Taught Me To Listen to My Body: Clare’s Story

I have always been someone who believed I could overpower being sick— at 31 years old, a hot shower, big glass of water, an over-the-counter pain medication, and a fresh face of makeup could still solve just about any ailment I experienced. But, when I broke my ankle in late November 2018 and started experiencing…

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Don’t Stop Until There is an Answer: Becca’s Story

At 19 years old, I never knew how much blood clots could affect my life. I worked at a daycare center all summer and, as a result, I was active every day chasing and playing with kids. One day, I woke up with severe back pain. I brushed it off at first, and blamed the…

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How A Drawing Saved My Life: Lori’s Story

In August 2014, I was overwhelmed with joy after delivering my baby boy, Jack. He was perfect, the delivery was pretty easy, and I was ready to go home. During a brief moment of quiet during his nap, I perused through the endless literature provided by the hospital. A hand drawing of a leg, with…

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Lucky to be Alive: Courtney’s Story

I started estrogen-based birth control in December 2018. I had a cramp in my calf, and two days later it was dismissed as nothing by my gynecologist. I stayed on birth control and what were actually clots in my right leg grew. I would later learn that the blood clots extended from my knee to…

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Being Your Own Advocate Could Save Your Life: Tiffany’s Story

For my college graduation trip, I went to Hawaii with my family. After our red eye flight back to LAX, I got up out of my seat and had severe calf pain in my left leg. I attributed it to running and didn’t think much of it. The next day, it was still bothering me,…

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Birth Control for Fertility Treatments Caused My Stroke and CVST: Antonella’s Story

December 21, 2017, started off just like any other day. I woke up early, worked out, and then got ready for work. I had a headache for two days prior. I was taking over-the-counter pain medication, but my headache was not so bad that it stopped me from my normal routine. While I was at…

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My Experience with a Blood Clot on My Brain: Amy’s Story

I’m a 25-year-old woman who doesn’t smoke, drink very often, or use any kind of drugs. I take care of myself, and I try to keep active. Over the past year, I have been in and out of the doctor’s office with a lump on my face. The lump was getting bigger, which was concerning…

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