Misdiagnosed
Lucky to be Alive: Courtney’s Story
I started estrogen-based birth control in December 2018. I had a cramp in my calf, and two days later it was dismissed as nothing by my gynecologist. I stayed on birth control and what were actually clots in my right leg grew. I would later learn that the blood clots extended from my knee to…
Being Your Own Advocate Could Save Your Life: Tiffany’s Story
For my college graduation trip, I went to Hawaii with my family. After our red eye flight back to LAX, I got up out of my seat and had severe calf pain in my left leg. I attributed it to running and didn’t think much of it. The next day, it was still bothering me,…
Birth Control for Fertility Treatments Caused My Stroke and CVST: Antonella’s Story
December 21, 2017, started off just like any other day. I woke up early, worked out, and then got ready for work. I had a headache for two days prior. I was taking over-the-counter pain medication, but my headache was not so bad that it stopped me from my normal routine. While I was at…
My Experience with a Blood Clot on My Brain: Amy’s Story
I’m a 25-year-old woman who doesn’t smoke, drink very often, or use any kind of drugs. I take care of myself, and I try to keep active. Over the past year, I have been in and out of the doctor’s office with a lump on my face. The lump was getting bigger, which was concerning…
A Career Ballerina Battles PE: Tiffany’s Story
My name is Tiffany, and I am a career ballerina dealing with the high risk of bilateral pulmonary emboli, or blood clots in my lungs. My professional dance career was side tracked as I sought treatment. It was March 15, 2017, and my senior year, when I was performing a ballet solo in George Balanchine’s…
Staying Positive Through My Experience with CVST: Maddie’s Story
Maddie first learned about blood clots from reading the warning label on her estrogen-based birth control prescription, but she never thought one would happen to her, especially in her brain. Read about her CVST diagnosis and recovery, and find out how she chooses to stay positive.
The Day that Changed My Life: Kimberly’s Story
Kimberly experienced ongoing chest pain, a racing heart, and shortness of breath, which she thought were most certainly due to a heart attack. She sought help from the emergency room on multiple occasions and was told she was experiencing anxiety, but she knew something was wrong. It wasn’t until she went to a different hospital that doctors …
Finally Myself Again: Katie’s Story
I ran my first marathon in 2017, started graduate school for a Masters in Accounting, and accepted a job with a public accounting firm post-graduation. I have always led an active lifestyle throughout high school and into college, which is why it is still difficult for me to wrap my head around the fact that…
When in Doubt, Check it Out: Melissa’s Story
Three years ago, I was starting a new school year with dozens of other school teachers in my district. About a week after going back to work, I noticed some changes in my health. I seemed more fatigued than usual, and I noticed my ankles were swollen. While walking my son around his new school…
My Blood Clot Experience as a Professional Fireman: Pat’s Story
My name is Pat, and I am a professional fireman in Iowa. In January of 2008 – after fighting a house fire in subzero temperatures – I got off shift and later that day I was having trouble breathing. I checked my vitals and saw that my oxygen saturation was low, so I went to…