Misdiagnosed

I was diagnosed with the genetic clotting disorder factor V Leiden when I was 15 years old. My aunty (my dad’s sister) had a blood clot during pregnancy and she learned she had FVL, which led to members of my family, including me, being tested for it too. While growing up, FVL never had any…

My name is Michele. I am a healthcare worker, mother, and recent survivor of venous thromboembolism (blood clots in the veins, which includes deep vein thrombosis and pulmonary embolism). I am sharing my story to raise awareness, both on a general level as well as from the perspective of a healthcare worker. In January 2020,…

In December 2016, my life felt as full as it could get. I had six kids ranging in age from 1 year old to 12 years old, a busy freelance writing career, and involvement in various community organizations, including a parent advocacy group I had helped form a year before. Yet, my concept of “busy”…

In July of 2019, I nearly fainted in my lobby on my way to work. My roommate was gone all summer, so I phoned my parents who talked me through the symptoms I had and advised me to call an ambulance. I met the emergency medical technician outside and after a quick electrocardiogram of my…

In March of 2020, I had my second child via C-section. The surgery went well, and my baby was healthy. However, afterwards, I had a significant postpartum hemorrhage, which caused my body to have to work very hard to clot. About a week after coming home from the hospital, I developed a low-grade fever and…

Everything started when I was 16 years old, which was six years ago. I couldn’t breathe, and even while walking a few steps, I was out of breath. I was taken to the hospital for what they thought was a chest infection. They did not think it was blood clots because I was so young.…

At just 23 years old, I have suffered with not only a DVT (deep vein thrombosis or blood clot in the leg), but also a PE (pulmonary embolism or blood clot in the lung). I was taking estrogen-based birth control pills for two years when I had a visit with my primary care physician due…

March 2015 was the start of a health journey that would impact the rest of my life. Earlier that month, I was experiencing a slight, nagging pain in the back of my calf. After a few weeks of dealing with the symptoms, I made an appointment with my primary care doctor. Later that afternoon, I…

I have always been someone who believed I could overpower being sick— at 31 years old, a hot shower, big glass of water, an over-the-counter pain medication, and a fresh face of makeup could still solve just about any ailment I experienced. But, when I broke my ankle in late November 2018 and started experiencing…

At 19 years old, I never knew how much blood clots could affect my life. I worked at a daycare center all summer and, as a result, I was active every day chasing and playing with kids. One day, I woke up with severe back pain. I brushed it off at first, and blamed the…