Filter Patient Stories by tags…

Misdiagnosed

Knowing Your Risk Could Save Your Life: Jessica’s Story

My name is Jessica Nichols and I am a 28-year-old female living in Cheshire, England. In December 2015, I had the shock of my life when I was diagnosed with a Pulmonary Embolism or blood clot in my lung. I woke up one Saturday with a very sore knee. However, I didn’t think much of it at the…

Read the full story

Finding Strength in Numbers: Brittney Berlingeri’s Blood Clot Story

We are all incredibly strong, remember that when the bad days outweigh the good ones. My name is Brittney Berlingeri and I am twenty-two years old. Over the summer, I was diagnosed with a pulled muscle that was then diagnosed as “pneumonia,” despite the fact that my D-Dimer test was elevated. I could not breathe. It was…

Read the full story

I Survived PE at Age 70-Something: Joan’s Story

This photo was taken before I went to the ER, but I was already having shortness of breath upon exertion. That was my only symptom. I saw so many doctors and had three CT scans without dye and nothing was found on my lungs. One week in March 2015, my breathing got worse and one…

Read the full story

My Story Ends With Hospital Discharge: Kaila’s Story

On October 25th, 2012, I called my boyfriend to come and pick me up from work, despite living just a 10-minute walk away. The bad shoulder and back pain I had been dealing with in recent days turned into a sharp stabbing sensation throughout my body, leaving me breathless and unable to walk more than…

Read the full story

A Super Hero Taken Too Soon: Manu’s’ Story, as told by Christina Martin

Manu Ajamu Williams was born in Chicago, Illinois, on October 14, 1977. Affectionately known as “Shaq,” he was always the life of the party and had a wide assortment of friends. Shaq stood tall at 6 feet 3 inches, and weighing in at 300 pounds he was all muscle.  He had beautiful honey-brown eyes that…

Read the full story

I Can’t Believe This Happened to Me: Alyssa’s Story

My name is Alyssa and I was diagnosed with multiple pulmonary emboli (PEs) in January 2012 at the age of 21. I have finally gotten past the “I can’t believe this happened to me” stage and have finally adopted the “I can do something about this” attitude. My three-year anniversary of pulmonary emboli is coming up…

Read the full story

Repeatedly Misdiagnosed: Kathy’s Story

My name is Kathy and I survived pulmonary emboli in 2003. I remember as young as 12 years old feeling pain in my chest. When I asked in 1979 it was dismissed as growing pains. When I asked a doctor in 1989 I was told it was panic attacks. I spent years thinking that I…

Read the full story

No One Should Have to Wait Five Months for a Diagnosis: Carly’s Story

Up until my senior year of high school, I hardly had a worry in the world. Just like many other seventeen year olds, I was looking forward to my spring break, summer vacation, and beginning college. In April of 2012, my life took a turn for the worst. I began missing school because of unknown…

Read the full story

I Was Told I Had Broken Ribs: Hannah’s Story

I had just graduated from college and I was moving back home to Helena, MT to start my career as a registered nurse. I woke up one morning and noticed pain in my left shoulder. I thought I had slept wrong or pulled a muscle. The pain continued for the next few days. I noticed…

Read the full story

I Never Thought it Could Happen to Me: Mariah’s Story

In October 2012, I started to feel a pain in my left calf. I immediately thought I pulled a muscle, so I tried stretching and even got new tennis shoes.  The pain would not go away and after about three weeks, and shortness of breath joined in. I had to take breaks walking to class…

Read the full story