Misdiagnosed

I learned about NBCA in a brochure that was in my doctor’s office at the University of North Carolina, and wanted to share my story. I woke up one morning recently, and noticed that my left leg was swollen, and also felt pain in back of it, so much so that it felt as if…

My name is Andy Morris, age 26. I have always been aware of the threat of blood clots, because my dad has had to take a “blood thinner” daily due to a protein deficiency.  He has a history of blood clots in his legs, and in one instance in particular he developed not just one,…

I never knew that I was a risk for a blood clot that nearly killed me. One week after giving birth to my second child I started experiencing hip pain, called the OB office, spoke with a nurse and I was told that it was probably the result of delivery and I was advised to…

My name is Christa and I have been a cardiac nurse at South Shore Hospital in S. Weymouth, MA for the past 15 years. My story is not from any of my many years of working in the medical profession but rather of the challenges I came across from the other side of nursing, as…

My sport and how I got started are directly linked.  I lost my father and grandfather to blood related cancers when I was a young boy.  In 2005 I became aware of the Leukemia and Lymphoma Societies Team in Training and got involved.  I became an endurance athlete and began raising money to fight blood…

Kimberly Hennings of Colorado shares her and her sister’s story of pulmonary embolism.  Kim developed multiple PE’s post-surgery in November 2007.  She later found out she carries prothrombin G20210A genetic thrombophilia, as do all of her family members except her mother.  Tragically, her sister Angela died of a PE at age 40 in July 2008. …

My name is Jassmin Robinson and I am a 14 year old young lady from Ohio.  I was correctly diagnosed with May Thurner syndrome on January 1, 2008.   Another name for this syndrome is iliac vein compression syndrome, because the left iliac vein in the groin is compressed by the right iliac artery. This increases…

It’s around 4:00 AM, and I’m still awake.  Why?  Because I am 20 years old and want to feel normal again and I can’t make what I am dealing with go any faster. My story started awhile ago.  Unknowingly, I began using a well known brand of birth control patch that was so prominent that…

Katie was a junior in high school in 2007. Her periods were irregular and her doctor suggested that she begin taking birth control pill to regulate them.  We told her physician that her father had been diagnosed with factor V Leiden after a tiny stroke at age 39. We were told that this constituted a…

I am a 21 year old female who was diagnosed with deep vein thrombosis (DVT) and pulmonary embolism (PE) in February 2012. I grew up playing sports, enjoyed many outdoor activities, and loved spending time with my loved ones. I had just moved about 900 miles away from home to Northern Ontario to begin nursing…