Misdiagnosed
I Survived PE at Age 70-Something: Joan’s Story
This photo was taken before I went to the ER, but I was already having shortness of breath upon exertion. That was my only symptom. I saw so many doctors and had three CT scans without dye and nothing was found on my lungs. One week in March 2015, my breathing got worse and one…
My Story Ends With Hospital Discharge: Kaila’s Story
On October 25th, 2012, I called my boyfriend to come and pick me up from work, despite living just a 10-minute walk away. The bad shoulder and back pain I had been dealing with in recent days turned into a sharp stabbing sensation throughout my body, leaving me breathless and unable to walk more than…
A Super Hero Taken Too Soon: Manu’s’ Story, as told by Christina Martin
Manu Ajamu Williams was born in Chicago, Illinois, on October 14, 1977. Affectionately known as “Shaq,” he was always the life of the party and had a wide assortment of friends. Shaq stood tall at 6 feet 3 inches, and weighing in at 300 pounds he was all muscle. He had beautiful honey-brown eyes that…
I Can’t Believe This Happened to Me: Alyssa’s Story
My name is Alyssa and I was diagnosed with multiple pulmonary emboli (PEs) in January 2012 at the age of 21. I have finally gotten past the “I can’t believe this happened to me” stage and have finally adopted the “I can do something about this” attitude. My three-year anniversary of pulmonary emboli is coming up…
Repeatedly Misdiagnosed: Kathy’s Story
My name is Kathy and I survived pulmonary emboli in 2003. I remember as young as 12 years old feeling pain in my chest. When I asked in 1979 it was dismissed as growing pains. When I asked a doctor in 1989 I was told it was panic attacks. I spent years thinking that I…
No One Should Have to Wait Five Months for a Diagnosis: Carly’s Story
Up until my senior year of high school, I hardly had a worry in the world. Just like many other seventeen year olds, I was looking forward to my spring break, summer vacation, and beginning college. In April of 2012, my life took a turn for the worst. I began missing school because of unknown…
I Was Told I Had Broken Ribs: Hannah’s Story
I had just graduated from college and I was moving back home to Helena, MT to start my career as a registered nurse. I woke up one morning and noticed pain in my left shoulder. I thought I had slept wrong or pulled a muscle. The pain continued for the next few days. I noticed…
I Never Thought it Could Happen to Me: Mariah’s Story
In October 2012, I started to feel a pain in my left calf. I immediately thought I pulled a muscle, so I tried stretching and even got new tennis shoes. The pain would not go away and after about three weeks, and shortness of breath joined in. I had to take breaks walking to class…
There is Life After Blood Clots: Rebekah Bradford’s Story
The personal story below is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including the patient stories that appear here, does not imply that NBCA is connected…
The Doctor Didn’t Listen: Jason’s Story, As Told by His Mother
Note: This is Jason’s story as told by his mother, Becky Hilty This story is about my son Jason Michael Hilty, born November 9, 1988. Jason died of a DVT on September 20, 2008. He was 19 and a second year student at Auburn University in Alabama. Jason had been complaining of pain in his…
