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Misdiagnosed

I Didn’t Give Blood Clots a Second Thought Before Experiencing Mine: Alison’s Story

Last July, I started feeling tightness in my chest when I breathed in deeply. I ignored it for awhile, as it didn’t seem to cause any real issues. A month or so later, I went to my doctor to make sure it wasn’t Covid or another respiratory infection. The doctor ran basic bloodwork, which came…

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Three DVTs in Two Decades: Heather’s Story

I’m 43. My first DVT experience was at 19 years old while in college. Long story short, I was sent home by two different doctors over two months even though my leg was in excruciating pain and eventually could barely walk. The third doctor knew what was wrong with me within minutes and sent me…

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Please Listen to Your Body: Kia’s Story

I’ve always had a history of health anxiety, always expecting the worst whilst hoping for the best. It took many years for me to manage my fears and understand when I was being rational or otherwise. Toward the end of April 2024, I had this horrible chest pain, directly along the left side of my…

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My Teen Suffered a PE After Surgery: An Anonymous Parent

My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…

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I Spent 18 Months on Supplemental Oxygen: Maresa’s Story

I had been having what I considered typical cold symptoms for about a month. Ongoing negative COVID tests gave little clarity. The doctors initially diagnosed me with a sinus infection then and pneumonia when the symptoms didn’t subside. I woke up Valentines Day 2022 with total numbness on my right side. I could not make…

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Being Diagnosed with a PE was a Traumatic Experience: Lauren’s Story

In early April 2023, I underwent a complete hysterectomy. My recovery was complicated by uncontrolled pain and urinary retention, which required a Foley catheter for a week. I then started experiencing a UTI, which required hospitalization. I was finally improving by the end of April, but on May 5, 2023, I suddenly started to experience…

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I Knew Nothing About Blood Clots: Shawna’s Story

During Covid, I was teaching from home and not as active as I once was. I began feeling short of breath at the start of the week, but attributed it to the bad air quality from fires in the area. On Thursday evening, I began feeling a pain in the right side of my back…

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I Begged Them to Look at my Lungs for Clots: Renee’s Story

I had two episodes where I was walking through my house and felt something in my chest. I felt clammy like I was about to pass out. After the second episode in March 2020, I went to the doctor I told her I thought I had blood clots. I felt something dragging through my chest…

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Blood Clots Are Often Misdiagnosed as Pneumonia: Taylor’s Story

My 14-year-old son died. I took him to the doctors twice the same week of his death. They diagnosed him with light pneumonia in his left lung. He died less than a week later and when the autopsy came back, it showed he had blood clot in his left lung and no pneumonia. I’ve done…

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My Diagnosis Took Away the Excitement of My Pregnancy: Emmy’s Story

I was 13 weeks pregnant when I experienced an awful headache while at work. I went home and spent the evening in a dark room. When I awoke, my head still ached, but it was manageable. Over the next week, I began having headaches and nausea throughout the day, so I contacted my midwife. She…

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