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Misdiagnosed

The Spark for Advocacy: Michele’s Story

My name is Michele. I am a healthcare worker, mother, and recent survivor of venous thromboembolism (blood clots in the veins, which includes deep vein thrombosis and pulmonary embolism). I am sharing my story to raise awareness, both on a general level as well as from the perspective of a healthcare worker. In January 2020,…

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Trusting My Body When It Was in Trouble: Katie’s Story

In December 2016, my life felt as full as it could get. I had six kids ranging in age from 1 year old to 12 years old, a busy freelance writing career, and involvement in various community organizations, including a parent advocacy group I had helped form a year before. Yet, my concept of “busy”…

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I Felt Like I was Crying Wolf: Anya’s Story

In July of 2019, I nearly fainted in my lobby on my way to work. My roommate was gone all summer, so I phoned my parents who talked me through the symptoms I had and advised me to call an ambulance. I met the emergency medical technician outside and after a quick electrocardiogram of my…

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Erring on the Side of Caution: Lindsey’s Story

In March of 2020, I had my second child via C-section. The surgery went well, and my baby was healthy. However, afterwards, I had a significant postpartum hemorrhage, which caused my body to have to work very hard to clot. About a week after coming home from the hospital, I developed a low-grade fever and…

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You’re Not Too Young: Amy’s Story

Everything started when I was 16 years old, which was six years ago. I couldn’t breathe, and even while walking a few steps, I was out of breath. I was taken to the hospital for what they thought was a chest infection. They did not think it was blood clots because I was so young.…

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The Road Trips That Changed My Life: Cydnee’s Story

At just 23 years old, I have suffered with not only a DVT (deep vein thrombosis or blood clot in the leg), but also a PE (pulmonary embolism or blood clot in the lung). I was taking estrogen-based birth control pills for two years when I had a visit with my primary care physician due…

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Caught Off Guard: Olanna’s Story

March 2015 was the start of a health journey that would impact the rest of my life. Earlier that month, I was experiencing a slight, nagging pain in the back of my calf. After a few weeks of dealing with the symptoms, I made an appointment with my primary care doctor. Later that afternoon, I…

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An Ankle Injury Taught Me To Listen to My Body: Clare’s Story

I have always been someone who believed I could overpower being sick— at 31 years old, a hot shower, big glass of water, an over-the-counter pain medication, and a fresh face of makeup could still solve just about any ailment I experienced. But, when I broke my ankle in late November 2018 and started experiencing…

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Don’t Stop Until There is an Answer: Becca’s Story

At 19 years old, I never knew how much blood clots could affect my life. I worked at a daycare center all summer and, as a result, I was active every day chasing and playing with kids. One day, I woke up with severe back pain. I brushed it off at first, and blamed the…

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How A Drawing Saved My Life: Lori’s Story

In August 2014, I was overwhelmed with joy after delivering my baby boy, Jack. He was perfect, the delivery was pretty easy, and I was ready to go home. During a brief moment of quiet during his nap, I perused through the endless literature provided by the hospital. A hand drawing of a leg, with…

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